Hi hun, that sounds much more positive.
I think it was an accumulation of things, not necessarily just the exercise.
OMG I AM SO JEALOUS of you lol, you can have hot showers bah humbug he he. I have a shower and literally have to have help i end up like a melted jelly on the floor lol. The heat i suffer wth Uthoffs syndrome just wipes me out it was one of my first symptoms, getting stuck in the bath as i couldnt get up wasnt my finest moment lol, and my poor husband had to try and pick me up out of the bath i nearly killed him bless. In the end i had to just pull the plug and lay there and as i cooled down i could feel my legs and managed with his help to get out. That was my last bath (oh i do wash lol), we had a walk in shower fitted.
I hate the heat ugh.
MS is just the Joker of a card pack. You never know what will happen each day. I have learnt now over the years if i have a good nights sleep i am going to have a bad day lol. If i sleep like poop i have a lovely day. Nothing makes sense. Its like going for a free disney ride up and down, down and up where you land no one knows lol.
Its sneaky too just when you feel great it will pull the rug from under your feet. I think it has finally done that with you, an accumulation of things, probably led to this, but it is just a glitch it too will pass. But you have to learn to respect it. Give yourself some rest there is no harm in that, just chill out have lazy days enjoy some netflix or amazon cuddle up with hubby play games with the kids, but just dont push yourself. its a time to heal. You will heal. Get internally healthy, eat well i expect you do anyway. I found i was sensitive to gluten and wheat and weirdly bakers yeast ( i had a test for all foods i was sensitive too), and i avoid, i find that gluten makes my legs burn as its a natural irritant to inflammation process.
A dip stick test can have infection that isnt always shown up. it should always be sent off. I find when i have done too much or got too hot or tired i have burning urine, i check my own urine we have a system me and my nurse in surgery i have sticks and i test it first most times its fine, if it isnt a bottle of the hard stuff goes down to her and she checks it then sends it to lab.
I am so pleased your husband is going to talk more and yes his sister needs to just listen and be there for him.
Can you tell him from me. You do not die of MS. No you dont. I know people who have had RRMS since the SEVENTIES and still doing fine.
My sisters mother in law well she had MS and she died at 82 she had it FORTY YEARS, she actually sadly died of diabetic complications, nothing to do with her MS. Now you see he has this in his head. His fathers grandmother could have died of anything and just had MS at the time. She may well have been diabetic. Way back then treatment of MS was pretty hit and miss and little known of it. Did you know for example that the test for MS was putting someone in bath of hot water (not scalding lol but warm), and seeing how it affected them. Its a fact now that 60 - 80% of people with MS suffer with Uthoffs syndrome (lucky you not jealous honestly lol) So if you couldnt get out of the bath (like what happened to me) you could be diagnsoed with MS.
we have come along way since then. I would suggest his grandmother died of something like heart, diabetes, or even perhaps a bad complication which in those days wasnt taken seriously.
You need to say to him its not YOU he needs to worry about it is his health that is going to suffer if he keeps hitting the bottle it doesnt take long for the demon drink to get to your organs and cause havoc sadly i have seen its devastating effects.
As he has this vision and is worried i think proper counselling would probably help him or even talking to MS society help line, as they can reassure him.
Your post is so much more positive. I am pleased you keep talking the guys on here are amazing and will always reassure you and try to help you.
MS is a disease which can screw with our minds, our bodies, our sight if we let it. Knowing what it is capable of is half the battle to dealing with it. Dont be scared as its all neurological. I have a saying. People say to me but you look so well… So i say "why shouldnt i look well, i am not sick I am just NEUROLOGICALLY CHALLENGED… lol…and it always makes them smile, as overall beleive it or not at 67 i am touch wood probably more healthy then most of my family, friends who suffer with a mirade of things from RA, arthritis, diabetes, thyroiditis, fibromyalgia, M.E., lupus, dysautomia, heart problems (2 friends just had heart stents)POTS, cancers (various sister had double mastectomy), sadly my eldest brother has wet mecullar disease in his eyes, other brother just had new knee waiting on new hip…my poor daughter 44 is waiting for MRI results for her neck as she has genetic disorder where her discs are collapsing and do you know what Raven, I think i am BLESSED LOL with MS.
Everyone i know who had the flu injection has had flu.
I have just got over my first virus (cold one) in TWENTY YEARS.
So having MS doesnt mean we have a weak body or are sickly, we just have frayed electric cord which needs a bit of electric tape to stop the electricity leaking out lol. Believe it or not mylin sheaf can repair itself although this is still very rare.
Yes exercise is ok for you, but gentle, walking is good, swimming as you dont mind heat is even better, nothing wrong in some exercise. I just think it was an accumulation of stuff that probably finally hit you.
Sorry i tend to ramble on lol. So i better go off and annoying someone else lol.
You will get there honestly. As you have had this relapse after 9 years you need to be reassessed by your neuro i think.
take care. big hugs. xxxxxxxx
I am sure you said you were seeing someone today, if so good luck.
this is a good link. What is MS? - MS-UK
