Good morning everyone,
i have just very recently been diagnosed with PPMS and I’m just trying to get my head FND it all and to be honest I am getting a bit lost in all the information on the leaflets, from he nurses and the hospital and doctors, it’s a bit of overload of waffling information that I can’t get my head around tbh.
Im im here looking for people that understand, I’m a mum a wife, and they are great but because I’ve been I’ll for years before diagnosis the rest of the family think it’s all in the head and everything is going to get better over night. I keep getting asked when are you going to stop using your crutches? Why are you using a wheelchair for going to the shopping centre? It’s really upsetting me.
So far I’ve only told my mum about my diagnosis, still to tell my sister, the rest of the family I’m not that close to and I will really only tell them when I see them which is every couple of weeks at best. And I’m scared of how they will react? I don’t know if I’m being over sensitive, or if this is normal? Anyway looking forward to hearing from you all.