Hi, good thread Polly, what I have picked up from this is Diagnosis seems to be mainly Based on the history we give at first consultation, I know after my 1st consultation I reflected a lot on symptoms I suffered many years before the concluded date it all started.
Diagnosed Nov. 2013 46yrs old, Neuro concluded had it about 9 years previous. My Mobility slowly declined by 50% between May and Dec last year hitting a full stop in January, I was given steroids for a week that Got me back on my feet ( i could stand and hobble round the house)which baffled the neuro. In his report after this he described my diagnosis as PPMS with relapses? Maybe he thought I was exaggerating!
main symptoms are; head,neck,spine pain in 2 lower back areas, right side is numb, drop foot right, pain in left shoulder(could be secondary pain as Pat said) numb toes now both feet, balance problems, blurred and double vision. Most recently burning feeling in both legs. Painful spasms,Depression,Last but not least fatigue.
I can’t walk outside at all unaided and then for only a very short distance, can’t stand for more than 5 minutes indoors before my whole body starts lowering to the ground my back and legs give way. Cant feel anything in my hands, can’t lift my foot from excellerator to brake in the car anymore. Can’t sit upright for longer than 20 mins pain in spine and neck. takes me an age to sit and get up on my feet. Getting up the stairs is agonising.
totally p***** off with PPMS.