hi my name is polly im 29 from Glasgow. ive recently been diagnosed with ms but still waiting for clear diagnosis in which type. Its all been a real shock as in the last 6 months my life has taken a new direction. Ive just had my 3rd mri scan as ive been getting one every 2 months as the inflammation and marks left on my brain seems to be increasing! Im trying to stay postive that a good day will come as ive went from a weak leg to full body tremours and lose of feeling in my feet and hands so radily. Im now becoming very confused and simple words and identifying objects is becoming a real challenge on a daily basis. Will it get easier? i just feel currently im fighting a battle that i dont seem to winning. I hope through this site that i learn more about the illness and learn of ways to deal with it.
Sorry to hear about your diagnois it’s a lot more common than people think.
I hope you’ve got an MS nurse to talk to, if not ask your Dr. to find you one.
My top tip is to keep a book with any appointments you have, medications you’re given, symptoms start and finishj etc. Otherwise with the number and variety of symptoms it’s easy to forget.
Register with your local MS group, they sometimes do talks or help sessions.
Get some of the leaflets from this site, they’re very helpful.
Unfortunately noone knows how their MS will effect them, just hope yours behaves itself.
Keep positive , take it easy and look after yourself.
welcome to this site and sorry you got a diagnosis.
on my good days i treat it as an adventure… oh who knows what tomorrow will bring!
on bad days i curl up in a quiet place with a cat and a book.
to answer your question, it does get easier in as much as we get used to it.
i agree with jen, join a ms society group or a ms therapy centre which is where i’m off to later.
my nearest ms therapy centre is in trafford about 15 miles away.
the centre offers loads of different therapies. i like going for hyperbarric oxygen therapy because it makes me feel a bit stronger but at the moment i have a cold and the pressure will be painful. so i’ll probably just natter to the others and drink (too much) coffee.
have you been given iv steroids? they brought me out of a massive relapse when i was first diagnosed and my neuro based his assessment of the type of ms that i have on how i responded to them. i’m rrms - relapsing remitting.
you need time to absorb all the information and come to terms with your diagnosis.
keeping a note of your symptoms as jen said will help you to be specific when you next see your neuro.
if he gives you a diagnosis he may give you a choice of disease modifying drugs.
you dont have to decide straightaway ask for more time
Welcome Pollyb. Think everyone has covered the basics. Do ask if you have any questions. May take a little time but someone somewhere will have an answer. BE
Thanks Everyone. The amount of support I have received from my own GP and consultant has been unbelievable, but they themselves arent the ones living with MS so that is why I joined the site. Just now im trying various types of medication to see what helps me, ive my gp this week as they wanted to start me on steriods but had wee infection so had to wait. Im hoping once I get the right medicine for me that I start to see improvements but its trial and error just now. My parent have told me to be patient things will get better and I do try my best to stay postive for me and my son but its just difficult on days where my feet wont do what my brain is telling them or my legs just buckle. Im hoping to learning more about the illness and sharing advice and tips on living with MS. Thanks you all Polly xx
Hi Polly from another Polly and my surname begins with B too!
Your first post did sound as if you were in a bit of a panic. But that is nothing unusually. Being told you have something as serious as MS, can knock the strongest of us!
Your last words do sound calmer…good!
I think you`ve done the best thing in joining this group. People here know exactly what you are talking about. As you say, the folk you are talking to do not know what having MS really feels like.
Give yourself time to absorb the news…it can take quite a while to get to know how to react and what to do when your symptoms happen. Do pace yourself, activity wise. Plan your days and always have some me time.
Accept any help that is offered and never beat yourself up for having an off day. We all get them. I enjoy the odd duvet day here and there.
You`ll do okay, as long as dont waste your valuable energy hun.
I was only diagnosed early this year and told it was likely ppms in the middle of the year so I totally understand the shock and massive turnaround it causes. I’ve been told it’s a wait & see situation and I think I already know the answer. I’m just trying to stay as positive and active as possible. Hopefully you will get to try steroids soon and see if they make you feel a bit better
Take care (abd feel free to vent as well, I know I’ve certainly had a couple of days where I’ve really wanted to throw the kind of tantrum that was only acceptable at the age of 5!). Being positive/brave is bloomin’ hard work for starters
Pollb, Do look up Vitamin B12 and Vitamin D3 deficiency MS - read the post from Karen about the youtube videos on Vit B12 deficiency. l know once l learnt about these important vits and started taking them - l felt - at last l was doing ‘something’.
hi my name is polly im 29 from Glasgow. ive recently been diagnosed with ms but still waiting for clear diagnosis in which type. Its all been a real shock as in the last 6 months my life has taken a new direction. Ive just had my 3rd mri scan as ive been getting one every 2 months as the inflammation and marks left on my brain seems to be increasing! Im trying to stay postive that a good day will come as ive went from a weak leg to full body tremours and lose of feeling in my feet and hands so radily. Im now becoming very confused and simple words and identifying objects is becoming a real challenge on a daily basis. Will it get easier? i just feel currently im fighting a battle that i dont seem to winning. I hope through this site that i learn more about the illness and learn of ways to deal with it.
thanks
polly
[/quote] Hello Polly and welome. I too have just recently been diagnosed in august and waiting to be told what type of MS I have…I see the specialist in december. Its quite a shock isn’t it when you first get the diagnosis?. I’m learning to take it one day at a time, some days are better than others. I’m afraid I don’t see it as fighting a battle, just as something that’s happened to me…I wish it hadn’t but I can’t change that so I have to learn to accept it. I’m only just starting to get this polly!! and it is hard to accept I know, just trying to be positive for you. The people on here are great and really supportive so you will get lots of help and advice. A sense of humour helps me as well…I love a good laugh. My husband says I’m weird because I laugh at things he thinks I really shouldn’t laugh at…but I’m not sharing that on here lol All the best, catcha later
Pollb, Do look up Vitamin B12 and Vitamin D3 deficiency MS - read the post from Karen about the youtube videos on Vit B12 deficiency. l know once l learnt about these important vits and started taking them - l felt - at last l was doing ‘something’.
[/quote] Hi Spacejacket When i was admitted into hospital they found out I had these deficiencies and now get B12 jag and vit D tablets to take each day aswell as Iron tablets. Neuro also referred me to the gastro unit as they were concerned with the problems I have with my stomach and bowel. I seen the consultant today and he does believe these problems are linked to my MS but will have endospocy and colonospocy next week to rule out nothing else is happening within my body. Im not looking forward to either but know I have to get them done to make sure nothing else is going on. Polly xx
[/quote] Hello Polly and welome. I too have just recently been diagnosed in august and waiting to be told what type of MS I have…I see the specialist in december. Its quite a shock isn’t it when you first get the diagnosis?. I’m learning to take it one day at a time, some days are better than others. I’m afraid I don’t see it as fighting a battle, just as something that’s happened to me…I wish it hadn’t but I can’t change that so I have to learn to accept it. I’m only just starting to get this polly!! and it is hard to accept I know, just trying to be positive for you. The people on here are great and really supportive so you will get lots of help and advice. A sense of humour helps me as well…I love a good laugh. My husband says I’m weird because I laugh at things he thinks I really shouldn’t laugh at…but I’m not sharing that on here lol All the best, catcha later 
[/quote] Hi Blossom My dad always makes me laugh and do agree that it helps so much and he forever telling me not to worry about people staring when I twitch or tremour as the worry will only make me worst. I just need to adjust that i do need more time to get from A to B. Im just hoping when im next back to see my MS consultant that well have more understanding of my type as from June I feel ive not really had any improvement in my walking and tremours and now have other areas affected. Thank you for your advice and I wish you well. Polly x
Hi Polly. Welcome. Just to say iron tablets can further irritate your bowels. I take spa tone - a liquid supplement from the Welsh mountains no less! - that doesn’t constipate me or cause irritation. Just a thought. xx
Hi Polly from another Polly and my surname begins with B too!
Your first post did sound as if you were in a bit of a panic. But that is nothing unusually. Being told you have something as serious as MS, can knock the strongest of us!
Your last words do sound calmer…good!
I think you`ve done the best thing in joining this group. People here know exactly what you are talking about. As you say, the folk you are talking to do not know what having MS really feels like.
Give yourself time to absorb the news…it can take quite a while to get to know how to react and what to do when your symptoms happen. Do pace yourself, activity wise. Plan your days and always have some me time.
Accept any help that is offered and never beat yourself up for having an off day. We all get them. I enjoy the odd duvet day here and there.
You`ll do okay, as long as dont waste your valuable energy hun.
luv Pollx
[/quote] Ive never met another Polly especially with a B name as their last name. I have tried to pace myself as much as possible, at first I thought oh no i can still do the same things but soon enough my body was letting me know oh no you cant take it easy! I try now to plan if im going some where how I am getting there, what am I going to be doing and how am I getting back as before this wasnt something I really thought about. Thanks for your kind words its just good now speaking to people who are going through similar things who are able to give help and support. Polly xx
Thanks I didnt know iron tablets could affect my bowels. I really need to look into all the meds im being given. At the hospital today they asked what I am on and when I was listing all of them my mum had a little laugh as I read out allsorts of medication and my mum said no wonder you have to right them all down in your book id never remember all of them. Its just so strange that ive went from zero medicine to my house is now becoming a pharmacy Thanks
There are lots of lovely people on this site who will all be there to help you whenever you need advice or just need to offload to those of us who know how you are feeling.
I was diagnosed in 2005 firstly with RRMS and now SPMS. It takes a little while but you will eventually stop worrying about tomorrow and learn to live with your diagnosis. Afterall, life doesn’t end when you get the diagnosis,we just have to live life a little differently.
Take things nice and steady and remember we are all here for you.
