Scared, pained and confused (brought from young persons forum)

Everyday living
1

Ive today received a letter from my neurologist at Salford Royal saying that he has brought my next appointment forward by almost a month for three extra MRI scans, Brain, Cervical and Thoracic. I’m not sure whether this means that my 1st scans that were taken at Stepping Hill Hospital at the end of November have found something which he needs to review or whether they were unclear. Unfortunately at my 1st scans I had a seizure and the Radiographer said that even though he thought that he had enough pictures to send to the neuro, I may need further scans. My GP had to contact my neurologist several weeks ago due to the rapid onset of my symptoms hence my appt being brought forward as well as an ‘episode’ in the surgery. She read through the neurologists original report and stated that it was quite worrying. Not exactly good with my mental state but I’d rather know the truth than having it sugar coated.

I have recently been placed with a very nice occupational therapist who assessed my needs at home and referred me to adult social care, I will have home help 3 times a week for basic things such as bathing and dressing.

I have recently developed a new symptom which I had never heard of until my OT told me about them, an ‘Absence Seizure’ which lasted 5-10 minutes. This has happened twice in a month.

Has anyone else had this type of seizure either as an MS symptom of EPY symptom?

Thanks

Dan

2

Hi Dan

Sorry you’re having a bit of a rough time of it. Personally I’ve never heard of an Absence Seizure either so sadly can’t help with that, but hopefully someone else here might know more. Regarding the MRI scans, by the sound of it it’s just that the first one wasn’t clear enough. But have you got an MS nurse? If so, I’d give them a call to see if they can shed any more light on it. A common problem that doctors and consultants do is to not explain things fully to us, which means our brains can easily go into overdrive, imagining all kinds of problems to fill in the gaps. Usually though the reality turns out to not be as bad as we imagined & feared. When you see your neuro it might be an idea to go armed with questions you want to ask, and getting him/her to explain things fully.

I’m glad you’re getting some help from social care though. I have someone come once a week to do things like cleaning & shopping, and knowing I have that support is a massive blessing.

Let us know how you get on when you have your neuro appointment.

Dan