I suffer with complete bladder retention plus sudden occassion uncontrolable urges, so basically it is all or nothing, I know many people on the board have bladder issues, so I thought I would update you on what’s been happening with me. At the moment I self catheterize.
The end of last month I had a trial sacral nerve stimulation implanted. This means that a thin wire was inserted through the sacral part of the spine, a stimulator was attached to this but on the outside of the body.I have huge plasters going across my my backside to hold everything in place which I have to keep on for a month. The month is up tomorrow.
The proceedure to implant the wire was done under general anasetic because I twitch and get cramp, generally it is done with a local but you have to be able to lie still. There was no problem with this I was in and out the same day.I have had to keep a diary for two weeks before the op and then for the month with the nerve stimulator in situ. If successful the implant a permenant wire and stimulator under the skin.
It has been a very uncomfortable month the plaster keeps sticking in me and pulling and it is quite a squash into my jeans. You can’t shower or bath and of course you have a box attached to the wire, which I have kept getting tangled up with.
I have had some success with it though. I had been able to pee once or twice a day,( it took about 2 weeks for this to happen) the rest of the time I was still using ISC. But the urgency had completley gone. I had been taken tablets to stop it but they left me with a very dry mouth, when I stopped the tablets the urgency went from one or two times a week to at least once everyday. I was told to stop the tablets 2 weeks before the operation so we would get a true effect. The other benifit is that the coccyx pain that I have endured for a number of years had eased considerabley.
You will notice I use the word ‘had’ - Well on Friday the stimulator stoppped stimulating! It’s lights still flashing but there is nothing happening. I think it must be to do with the wire into my spine
Tomorrow we are meant to be doing an ultra sound of the bladder to see if it is emptying and review the dairy I have had to keep, and make a descion as to whether it is worth going for the full implant, but I’m not sure what will happen now.
Will it have all been worth it, well I will find out tomorrow.