Evening all, hope you`re doing the best you can. Just devoured a plate of mince, neeps and tatties! Our Scottish friends will know what that is, eh? Lovely!
Well now, you may recall that I had recently put in a request to increase my care hours, (Direct Payments) as things were getting harder and harder for hubby.
I got the call today…it`s been approved!
This means I can have a carer come every morning to shower and sort me out! Then another can take me out twice a week, plus do 1 sleepover a week. This is particularly helpful to hubby. My nocturnal needs to get up for a wee are all over the place! Hell be able to get at least 1 good nights sleep a week. We have a spare bedroom upstairs (i sleep downstairs), which is quiet and peaceful…lucky him, eh?
All this starts next Monday…with a T`ai Chi class!
If anyone has wondered about Direct Payments, then go for it. It does seem daunting at first, but is great when it`s sorted.
And you got the impression they weren’t going to come through, didn’t you?
Miracles do happen.
Luv,
T.
x
Yeh they do Tina! ta for your reply. Just read your post about your boss who needs educating on fatigue and MS. As he`s leaving, do you think you should bother? maybe not, eh?
Probably not worth it, as you say, as he’s moving on. Ironically, it IS the fatigue that makes me think: “I dunno if it’s really worth explaining to him”. Doesn’t seem worth getting on my high horse with someone who won’t care either way, in a week or two, does it? And it might end things on a rather sour note, if I start quibbling about my appraisal, with somebody who isn’t going to be my boss any more anyway.
One upon a time, I would’ve thought: “Yeah, but this was unfair - I need to challenge it”.
But nowadays, I’m more inclined to think: “He didn’t say anything really damning; it’s not worth the energy of responding.”
Obviously, if it had been an official reprimand, rather than just “comments”, I’d have had no choice but to defend my position with a lecture about how MS can affect people. But as it probably won’t even go on the record, it doesn’t seem worth the effort.
Hey Poll I am so pleased that you’re getting your hours, it’s fantastic news! You and hubby both deserve it. As you were worried that it wouldn’t be approved, it must be such a load off your mind. Good things do happen, Love Teresa xx
