I went to see a Rehabilitation consultant about 3 months ago. I made a list of things to ask (as suggested by members of this site) and I now fee that things are happening. The consultant wrote my GP a long letter and amongst other things said that I should have another assessment by a neuro consultant.
(I was dxd 20 years ago as Benign MS. Had another appt with Neuro consultant 7 years ago when things went a bit downhill). Now my symptoms have gone over the cliff I feel another assessment is due as I am on no medication and my walking and balance are really bad and fatigue hits me after a very short time of activity. eg having to rest after shower etc.)
Anyway my GP decided it would be a waste of time seeing a neuro consultant (3rd time he has refused) and thought that I may be anaemic so sent me for a blood test. (Came back negative). I went to a neuro physiotherapist who gave me exercises and was very helpful and also said she would send a letter to my GP (copied to me) saying I would perhaps benefit from fatigue medication and a reassessment.
I saw my GP on Monday and he says he will write to Neuro consutant for an appointment - yippee - he also gave me some Amantadine tablets for my fatigue. Obviously I do not know if these will help me - but feel that it is a step in the right direction. I also have a new 4-wheel rollator to help me round the house and garden, etc. This arrived yesterday and has already made a big difference to me.
So I am now doing exercise for my walking, balance, have lost a couple of pounds, so can now feel my core muscles working again. I am on medication - hoping it will help fatigue - and a new rollator to help me move around. So I feel in a very positive frame of mind at the moment and thought I would share this with you.
Hope everyone else is OK - certainly a lot cooler today which should help us all.