Restless legs/arms/back/hands!!

Everyday living
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Hi all…I need some major advice as I feel as though I am going to break down with this feeling day in and day out!

Besides the chronic daily pain I am in…over the past 3 to 4 months I have started to experience Restless Leg feeling, but its not restricted to my legs, its in my arms, my ears, face, basically all over my body, but worse on the right hand side.

Doc doesn’t see, overly concerend about this. He told me to start taking Magnesium tablets (1 each morning )…also a friend told me to try Tonic Water. Although the symptoms have eased a little, it is still there, and driving me mad, when it does ease for a few hours, my body is a dead weight, and I am exhausted with it all!!

Any help, info, advice you can give me would be greatly appreciated. It is affecting everything in my daily life. Could there be something underlying causing this, or is it a side effect to my Neouropathy?

Thanks guys x

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Hi Martieslass,sorry to hear of ya probs, but do you have an MS nurse to talk to about this? i had a problem with wot i could only describe as involentary leg movments, (spazms) my nero perscribed me ,Baclofen, althow i now use Colmifen10, 20 MG, depends how ya feel 10, 20.or 30, & herby tabs to help me sleep a little!

oH how i miss a good night sleep!! thows heady days of dreeming + snoring, only too be woken up by a foot that thinks it being chased by a three headed monster called the motherinlaw! i diegress, Baclofen sorted me!!

stay safe, Julien,

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Hi, I suffer with spasms all over, or rather I did until I was prescribed Clonazepam and then the spasms eased and I finally got a great nights sleep. I still get the odd one or two during the day but the nights sleep is fantastic. Clonazepam is not for everyone as it can be addictive but for me I wouldn’t want to be up all night jumping all over the place again. I hope you find something that will help you. You could speak to your MS nurse or doctor or your Neuro. I feel for you and hope you find relief soon.

Janet

x

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Hi Julien, So so sorry it has taken me so long to reply to your message…things haven’t been good for me these past months, going through a depressive state at the moment…Anyway…Thank you for taking the time to advise me…it is not so much involuntary movements, but definitely more of a falseness of energy (if that makes sense)…the restless feeling I get all over makes me feel very energetic (but not in a good way)…It keeps me alert, and even clothing touching me annoys me. When it does ease off for a little while, I am left drained and in so much pain…Doc has prescribed me pramepexole a few months ago and it helped a little in the beginning, but not anymore, but he wont give me anything stronger, as he says “I’m taking enough tablets”…I am going to speak to my pt about it when I attend next month…Thanks again :slight_smile:

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Thank you so much Janet…please see my previous reply referring to this post…thanks :slight_smile:

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no one listens, no one believes. no one gives a !@#$%^&

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Hi sorry your feel so down.

You know it could be a reaction to all the drugs you are taking, it actually sounds as though it could be. Maybe you could write down all the tabs your taking. My daughter has had similar with this on Lyrica.

What you describe sounds a little like an overload of adrenalin, it has to go somewhere.

Have you always been an active person?

We do believe you, the trouble with things invisibile is they are hard to describe.

Sit down and think about writing a diary, when is this worse, day, night, what did you eat etc.

Check out all your tablets and make sure they are not over-reacting against each other.

When you get this really bad, eat something sugary see if it helps.

There is always a reason for everything, you just have to become a detective and find the key to it.

I have had very similar on occasions, and i know when i had something sugary it went.

You might also have issues with your autonomic system. So its not shutting adrenalin down properly. Look up dysautomia or POTS. My brother has dysautomia and he often tells me he feels WIRED up…really weird.

Please check it out. It can also cause really bad anxiety and depression, and I know people with MS can have POTS too.

BUT I am not a doctor just trying to help you a little look outside the box.

http://www.dinet.org/index.php/information-resources/pots-place/pots-symptoms

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A friend of mine (not MS) suffers from restless leg syndrome. From what she has said, and what I saw her go through when she was trying to get it under control it sounds horrendous. She is on (I think) pregablin which seems to have worked wonders. Def. Speak to your neuro/ MS team about what meds you can take. Good luck. X

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Hi Crazy Chick…thank you so so much for your informative post re my RLS…I am so sorry about the fed up comment I put up…was just so frustrated at feeling like this all the time…and secretly aching and crying on the inside, so I am not a total loser to my family and my children…

I will take everything you have said on board, and i will start to keep a journal of my days / flare ups / and medications I take.

thankfully tonight, it has eased a good bit, so should get some sleep.

Thanks again, I really appreciate it

Hope you are doing ok yourself, feel so isloated with this, its horrible

Take care X

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Hi Katy, thank you so much for your kind response…I was on Gabapenten…but had to come off it due to the horrible side affects it had on me. I am def going to speak to my GP again about this…I do take a lot of medication each day, from opiods to magnesiuim, vit b and d tablets. iron supplements. inflamatory medicines as well, could be something lurking in there which is not helping.

Thanks again, I really appreciate it.

Kind regards X