Haven’t posted on here for a while (sorry) but I am after some helpful tips/ advice. Have looked through the forum, guessing that this has been covered somewhere
I think I am sleeping (although I know it is disturbed at times) through the night.
Trouble is, it doesn’t feel like restful sleep- always feeling tired, although not like when I was 1st diagnosed (worry/ stress/ fatigue trying to cope with the symptoms etc).
My MS nurse (Del, who is fantastic for anyone new in the Herefordshire and other areas she covers) has just told me to increase the Tegretol (Carbamazapine hope the spelling’s ok) dosage to try and overcome the recent symptoms that have developed (L’Hermittes is now attacking/ affecting the RHS of my body). Still working as a driver, so won’t use sleeping tablets, not that I think I need them. I see her again in the next couple of weeks, to see if this has helped. It hasn’t, so can see she may try putting me onto different tablets
Body ‘thermostat’ is broken (legs freezing, feet hot, body and head hot, or legs freezing, feet freezing so I can’t get warm.) No matter what I try, my legs are always freezing (even Egypt on holiday last summer 40 odd degrees outside and cold legs!!)
I think the easiest way to describe how I feel is drained.
I already use vit B, D, and numerous other supplements to aid tiredness/ memory etc.
Excuse the ramblings of a “Saga Lout” and hope I have put over what I mean.
Thanks one and all and hope you’re all having a good day