Hi all, this is really getting me down, I have gone from not being able to sleep to wanting to sleep all the time. I am still working full time and when I am at home just seem to want to sleep. Take yesterday for instance, I went to bed at about 10 pm fri night and slept till 5pm on sat my whole day gone !! Last night I went to bed at 1130 only been up for 6 and a half hours and I made myself get up at 11am this morning. I have just prepared a meal and am so tired again. I feel like my quality of life is slowly diminishing, just seem to work and sleep. I love my job and would be devastated if I have to give it up. It’s not a role that I could do part time. Any suggestions would be appreciated. Thanks. Karen x
Chat to your doctor about drugs to help your fatigue amantadine is one that might be prescribed. Hope it helps
I am no expert on this and I am sure more people will come up with better advice but it seems to me this is fatigue not tiredness as they are two completely different things. I have the opposite to you and can’t sleep but I went through a period of fatigue and it is awful. I thought I was lazy until my GP told me otherwise. My neuro talked about a drug that can be perscribed but I couldn’t start it at the time as I was starting DMD’s and due to side effects etc he said he would consider it later once the DMD had been sorted but obviosly I don’t need it anymore so I would speak to your MS nurse if you have one. Unfortunately I cannot remember the name of this drug but I am sure they will be able to give you something and hopefully it will pass soon.
Do you think it may be the drugs that are making you feel this way? I know fatigue is horrible but sometimes the drugs we take make us tired as well, maybe you need a change in your drugs. I suggest you have a chat to your ms nurse, I’m sure she’ll be able to advise you. Sending ((((HUGS))))
I think modifinil (hope I spelt that right) is sometimes given for fatigue too as well as amantadine. Some people favour better with one but it’s worth a shot. Fatigue’s a nightmare so definitely go see your GP or speak to your MS nurse for advise.