Relapse-help please

Everyday living
1

Hi, I think I’m having a MS relapse. My feet feel frozen like I’ve been stood on ice for hours. My toes feel like they could snap off. I have been to see my doctor. She advised me to increase pregabalin to max dose. She was going to write to the neurologist. That was a week ago now. I still have the pain and now have tingling in my legs, numbness around my eyes, and I feel like I have been riding a bike for eight hours. I don’t know if these symptoms will go or whether this is my new normal.
I received a text inviting me for a Covid vaccination yesterday. I don’t know if I can have the vaccination. The advice is that if you’re having a relapse to wait until it goes. it was a year for my last relapse to resolve it never went completely.

not sure what to do.

any advice would be welcome

thank you

xx

2

Hello Tonkaluna

Until your appointment with your neuro comes through, Be very kind to yourself.

If you are tired, rest (have a duvet day/week).

If you are cold, wrap up warm (again bed sounds good).

You are right to leave the covid jab until your relapse is finished.

I am really sorry to read what you are going through.

Sending you huge hugs through the ether.

Carole x

3

Do you have an MS nurse that you can contact by phone? maybe quicker than waiting for a nuero to get in touch. They might be able to offer you steroids to resolve the relapse quicker (my own nurse would tell me to ride it out unless the relapse was particularly problematic) or request an MRI to see what is going on. The benefit of the MRI is that if something is found i.e. new active lesions then more treatment options could become available to you. Sorry that you’re going through it but hopefully you will come out of the otherside soon

4

Hello

Why not phone your neurologists secretary and ask if you can send him/her an email which could be forwarded to the neurologist.

You could describe your symptoms, tell him/her what your GP has said, ask for advice re the Covid vaccine and ask what advice they can give you.

Meanwhile, simultaneously, take a wee sample to your GP surgery (phone them first to explain you appear to be having an MS relapse and the advice is generally to check there’s no UTI causing the faux MS symptoms). That way you are covering all basest.

If everyone agrees it’s a clear relapse and that you definitely don’t have a UTI (or of course symptoms of Covid or any other virus) then you might be advised to take some high dose steroids. That way you might see this relapse off quicker than a year!

Best of luck.

Sue

5

Thanks for replying. I was discharged from my neurologist a few years back as I was pretty stable so I’ve no access to a ms nurse but I am being referred back to a neurologist.i have been given a high dose of steroids now and just planning on duvet days for a while. My feet hurt to much to stand on then longer than I have too. I am scared now of what the future holds.