It has been a while since I last wrote, but I am feeling like I am on a bit of a roller coaster (pardon the pun) and would like some help.
I was diagnosed with MS in July 2018 by my neurologist. There was a bit of a “wait and see” approach initially, after having symptoms for 9 months. In October, my left hand side of my face dropped slightly and couldn’t move for a few days - initially thought of as Bells Palsy, my neurologist later explained it was probably a relapse and we moved onto discussing DMD’s - in particular Tecfidera, which I agreed I would start.
Four weeks ago, I had another flare, this time affecting my speech and left arm. After taking steroids it has resolved quite quickly and I have been left with a chest infection (+ antibiotics) to get over! Just in time for my first delivery of Tecfidera which is scheduled for next week.
I have had a chat with my MS nurse about side effects and what to expect, but I was wondering if anyone had any experiences with the drug and whether they would be happy to share them? Do they help? How do you manage work/kids when taking them?
Also, does MS always feel like you are taking two steps forward and being hit by a brick wall! Anytime I seem to be making some progress towards being able to work/manage the kids/life in general, it seems to decide to come up again. Any help would be really appreciated.
Many thanks once more.