Well not sure how to take it but most of you will remember my first neuro was the pits and even though he did do a lot of tests his bedside manner was terrible. He kept telling me tell him if something new happened but when I did he failed to help me and wouldn’t give me any meds and almost insinuated it was age related/hypochondria and just to get on with it.
I was referred to a general neuro at charring X who thougth ?MS and then referred me to a neuro with MS interest. I saw the new neuro’s team and had a good experience. They thought my signs and symptoms fitted with ?MS and two possible episodes but couldn’t diagnose as I had non-specific lesions. They offered an LP and EVP but on the basis positive results would only give a diagnosis of possible MS and they wouldn’t give me DMD’s I decided not to have the tests. I was recovering at that point andidn’t want to be diagnosed wrongly if in fact it did end up being something else.
They gave me a follow up for april this year but now had a letter saying the neruo is on sabatical and I’m being referred to someone else in his team.
The good thing is it’s Dr Malik who from what i’ve heard is great so at least that’s a bit reassuring. The thing I’m not so sure of is my old neuro put in his letter whether he could see this lady (me) with MS when I haven’t been formally diagnosed. Having that written in my medical notes when I in fact haven’t been diagnosed doesn’t sound right as of course it has all sorts of implications. Am I just overreacting here?