I have secondary progressive MS and recently I have been experiencing numb/painful feet, lack of co-ordination too. Has anyone experienced anything similar?
Hi Viv,
The only time I’ve felt un-co-ordinated is during a relapse when I’ve been struggling with vertigo. I’ve had numb feet for the past 15 months and are painful when cold.
Do you think you are coming down with something that’s exacerbating your ms symptoms? Hope things settle down for you very soon.
That’s exactly how my feet feel too, I’m just struggling in general with feet
Tbh, I struggle in winter with feeling cold all the time. I tend to wear thermals, plus thermal socks. I’ve tried compression socks as well, but found they don’t keep my feet warm enough.
You say you’re struggling with your feet, in what way? If it’s the cold try thermal socks, to help with circulation try compression socks. Hope this helps you.
Hi Viv Wrench, I’m SPMS and have struggles with my feet and other parts of my body for years with pain and cold, but your’s is your feet so will stick with that. Mine goes from freezing cold, to boiling hot, during the day, cold, numb and painful, I always wear good thick socks and enclosed slippers, doesn’t make a difference, I’m in a wheelchair and sometimes even have a throw over my legs and feet. At night for bed, my feet decide it’s time to turn to feeling too hot and I mean scalding hot, so out come the cooling pads and cooling towels, pads lay over various parts of my legs, towels over feet and bottom of my legs, this does help me get to sleep, once I wake for the loo, I’m back to square one. Last night for instance, middle of the night I could cheerfully have chopped my feet, right leg and right arm off, the pain is so bad. Years ago a neurologist told me it’s because our central heating system doesn’t work right any more, that is to do with the fluctuation in heat and cold, the numbness is nerve damage. I’ve tried the med’s that are available they don’t work for me. If I were you, I’d speak with my nurse, or GP, rule out an infection and then take it from there, if you’re not on any med’s, they ask you to try, good luck.
Jean x
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To be honest, I’ve bought some compression socks, do they help? I don’t know what to do for the best and my feet feel like I’m walking on cotton wool. What do you wear on your feet during the day!
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I am really struggling, sometimes feels like I’m walking on cotton wool and I can’t find anything comfortable to wear on my feet. I know exactly where your coming from that you could quite happily chop your feet/legs off. I am struggling with being overweight but it’s so hard thinking what best to eat that doesn’t take too long to prepare, I’m not on my own by the sound of it, other people are struggling very much too. Thank you for replying
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Tbh in the winter time I wear 2 pairs of thermal socks, I’ve no feeling in half of each foot, indoors I wear slippers and when sitting down I have a heated blanket that goes over my legs/feet as they’re always cold. When I go out it’s 2 pairs of thermal socks and sketches trainers, as they give me support, plus they’re fitted with the other part of my foot brace.
I don’t tend to walk about without footwear as I can only feel half my foot, it feels weird and I feel unbalanced as well. I was wearing compression socks until the weather changed then my feet get so cold the only way is thermals. x
Hi Viv Wrench, I totally get the cotton wool feeling, it’s not nice, none of this is, take care of yourself and chin up, that’s all any of us can do.
Jean x