I saw my neuro for routine check up in February. I’ve been on Gilenya for over a year and all is going well from an MS point of view, just the usual day to day symptoms but no relapses. She was not happy that I’m still suffering with severe acid reflux though and when I saw a doctor last year he dismissed it as possible IBS or MS related. Consequently I have been avoiding the food and drinks which are known triggers for me and she didn’t feel this was satisfactory. My neuro does not feel the acid reflux is caused by Gilenya and she didn’t feel it was directly caused by MS either. She said she would write to my GP and ask them to investigate this further and told me to follow this up after several weeks as it would take a while for the letter to be sent.
I normally get a copy of the neuro’s letter but hadn’t received anything so I phoned my surgery recently and they said yes, they had the letter, the GP had initialled it and filed it! I have just been to an appointment with a new doctor at my surgery and she was lovely. She has ordered several blood tests to check for iron levels, B12 levels, full blood count, thyroid function and several others which I have forgotten. She has also put in an urgent referral to gastroenterology at hospital (she put it as urgent because otherwise it could be several months before I hear from them and she didn’t want me to suffer any longer).
I’m embarrassed to admit that I got a little tearful because it was so refreshing to have a doctor that took me seriously and didn’t dismiss my problems as being part of my MS. She said she was overlooking my existing chronic condition and wanted to investigate the stomach problem as a separate issue because it was affecting my life and she understood that if I was awake in the night with vomiting and diarrhoea this would have a knock on effect on my fatigue. I could have hugged her! It may simply be GORD but it has been worrying me that it could be something else so although I don’t really want further invasive tests, it will be one less worry even if nothing can be fixed. I’m still in shock at finding a GP that was so understanding. I’ll have to make sure I see her every time now and I really hope she stays (we have a VERY high turnover of GPs normally).
I turn 50 tomorrow so I’m hoping that my 50s are kinder to me than my 40s have been. When I turned 40 it was the start of migraines, then MS followed and then acid reflux. Fingers crossed that my 50s can be the start of everything calming down