As some of you knew I was really quite worried about my 12 year old daughter as she was beginning to struggle with my disabilities. Once my formal diagnosis came in the summer she took it really badly.
Well on Thursday/Friday she took a wee breakdown and let the barriers down and cried and cried, and I really do mean it she is not a crier, she is as deep as the ocean.
she wants her old mummy back, she doesn’t want me sore every time she cuddles me (trust me some of those hugs she thinks she’s 2 not 12!) she wants me to be fun again all the time not sore and tired and upset and needing a rest.
It was heartbreaking, but I was also glad it came out. I finally got her today to read the children’s guide to MS today after her refusing to read it up till now. It helped a lot, I also spoke to her school again, because she is doing more and more at home for me, she has to know 10 different medications. She has to help me up in the morning on about 20% of the time, get me out of bed get me meds and help me with stairs and things. Then after school she has to help with house things as well as me, so we have discussed it and we are going to register her as young carer, even though she isn’t my main carer she does a lot for a youngster.
Sometimes it’s good to break the flood gates.