in the last week I have been diagnosed with RRMS. After doing lots of research I have two quick questions
Do any of you have problems with typing since diagnosis? I am a teacher and am writing reports and quite often they are coming out like gobbledygook! I am also struggling to spell properly! Usually I can type with few errors. I was wondering if anyone has a similar problem? All I can say is thank God for spell check.
There seems to be lots of diets that are meant to have a positive impact on MS - has anyone got any experience of these?
Hi, I have real problems with writing, typing, sometimes thinking of things to say but not all the time.
I follow the best bet diet it is quite strict no gluton,dairy,sugar,legumes its hard sometimes but I feel so much better, my fatique is much less so its worth it, I know a lot of people think its rubbish but I think its not costing anything so its worth ago.
when I first was diagnosed my Husband got me a book by Judy Graham MS Naturally which still helps me 3 years later it got some really good advice on diet,exerciseand also gave me some hope!
Itās not the Dx that causes typing problems - itās the fingers.
But seriously, I was making typos long before I had the MS diagnosis - so I started looking at why (Blame my research background). The most common ones:
Letting the shift key up a fraction ahead of pressing the letter key - so no capital letter.
Hitting two keys in teh wrong order.
Over time, others crept in, but since the MS I have gone back to the two above, and added a tendency to hit two keys with one finger. It can be worse, as I have an intention tremor in my left hand which really does not help. However, I retired about 8 months after my Dx (2009) and I just do not type as much. So, that could be just as much a contributary factor as the MS itself. You just have to rely on the spell-check.
Diets? The only one that works is the one that is right for you.
Several of the āwonderā diets are based on one personās experience - and there is no way anyone can prove, or disprove, that the ācureā was actually a very long relapse.
Any healthy diet will be good for most people - but not all!
Back when I had a heart bypass fifteen years ago, a cardiac nurse started telling me all the things that my diet should and should not have.She was surprised to find that I already followed that diet exactly (that was the Mediterranean diet).
So, just do not get hung up on diets. Find a healthy one that you can tolerate and enjoy, and stick with it.
I feel like Iāve developed some form of dyslexia since my diagnosis. My spelling is atrocious now.
When Iām reading many words look different too me. I have to look at some words for a couple of minutes, to convince myself it is actually the word I am thinking it is.
Iām finding avoiding foods containing gluten is helping me, with regards to my digestive system.
Oh, Iāve been doing the two keys in the wrong order thing such a lot lately!
Itās particularly frustrating, as Iām doing some online language learning, and I confidently type the ācorrectā answer, and hit return before reading it back - only to find it had a typo in it. So that word (which I knew) is marked wrong, and will be flagged for review again tomorrow - on top of those words I genuinely got wrong.
I know itās a case of more haste less speed, and if I took the time to read back what Iād typed, instead of what I think Iāve typed, it would happen less often.
But sometimes Iām presented with a couple of hundred words and phrases for review, so naturally I want to work through them as quickly as possible, and press on with the new material.
Itās so annoying when a word I had right in my head goes in the āstill not learntā queue, because of a stupid typo.
One of the two websites Iām using has a limited amount of artificial intelligence for typo detection, so sometimes it will say: āOops - nearly right - you made a typo!ā - and treat the word as correct anyway. But not always. The other site does not make any allowance for probable āfinger troubleā and assumes you just donāt know.
Prior to my diagnosis, I used to joke about whether there was any such thing as āadult onset dyslexiaā, as I wondered if I might have it!
I also get the thing about not recognizing familiar words. Although, to be fair, I think thatās a tiredness thing, and I sometimes did it before I got (noticeably) ill, too.
An example is: ācurtainā. Simple, everyday word. Sometimes Iāve had to look at it several times to decipher that it isnāt a verb, pronounced similarly to: ācurtailā.
Iām wondering: āWhatās: āto cur-tainā? I donāt think I know that word!ā
Then, moments later: āDuh! Itās a curtain, of course!ā
Since taking LDN - and a high dose Vitamin d3 and B12 - no brain fog - more alert- no fatigue. A B12 deficiency causes all sort of symptoms - many mimic MS. Google āCould it be B12 - an eperdemic of misdiagnosisā. lt also is now known to cause early onset dementia.
Thanks for your comments, it is nice on here to get a quick answer, if only the NHS was so quick weād all be singing!!
Anyway, with regards to my typing, I am currently using a normal keyboard at school and that is causing me all kinds of problems but strangely enough the keyboard on my laptop is much easier to use. Even with capital letters! It requires much less effort to hit the keys though. I might start using it for work to get my reports done. My spelling is definitely getting worse, I look at words again and again and in my head they are spelt well but the spell check is not agreeing and disappointingly the spell check is right!! Ah well!
Thanks also for the diet info, I was reading a book about the Wahls protocol but actually difficult to stick to. I am going to cut the gluten and avoid dairy as much as possible for now and see if it makes a difference. I am alos going to find some good vitamins to help boost the veg I eat, although thats quite a bit during the week - not so good at the weekend!
Cheers guys and gals, you have made my day by replying to me - I thought I was going mad with the spelling and typing thing and nearly chucked the computer out of the window earlier - obviously, all of this it itās fault and nothing to do with me!
I am also a teacher and since January my handwriting has gone nuts, typing a little better. Sorry to hear this as it can really get you down. I have put some suggestions below which helped me:
Contact āaccess to workā and see if they can come in and make any suggestions via a report. I had them in earlier this month and they looked at my office setup and made some recommendations to help me
See occupational health and get your problems on paper so they are recognised, as will be the need for you to be given more time to complete tasks.
Look for relevant inset. I know that it is often a waste of time but I had some recently on time efficient marking strategies which actually benefit the kids, are āofsted friendlyā and DO work!
Hope this advice helps, and things get better for you
