Pressure sores

Primary progressive MS
1

i have had one on my back a year healed 3 times but it comes back nurses cime to dress it how do you manage with it and stiffness my hips are sore every day and i applied for a grant for a special bed with ms society just waiting on news anyone have any advice cheers x

2

Hi, I am sorry to hear of your pressure sores…it is something I`ve never had, but fear them greatly. My carer checks, moisturises, and dresses any redness or soreness daily.

I have a profiling bed with a pressure care mattress, which my district nurses organised.

Have your`s not mentioned this?

polllsx

1 Like
3

I have a pressure matteress but its not helped at all they said its mot a proper pressure sore where it is, is where i had lumbar puncture in 2014 i got the sore on my back last year i want a bed like hospital i need it my mobility got worse with s water infection last year ended up in hospital for like 3 weeks then rehab for 3 too.

4

Hello Alysea.

You have certainly had some bad luck with your health. My current OT and physio are trying to address the danger of pressure sores. I try not to stay too long in the same place. I’m not active and I only have a few places where I can sit. It’s a struggle to move but I believe it’s helped prevent the sores.

Best wishes, Steve. x

5

Thanks Sreve x

i have this sore on my back had it for a year now they said it’s not like a normal pressure sore it has healed 3 timrd and dr says if not healed soon i need to be refered to a specialist.

i got cellulitis last year and my mobility got bad when i had a uti for like 6 months no sypthoms and now i just got diagnosed with secondary lyphodema.

i just wanna try improve mobility but the stiffness is bad and pain so i applied to ms society for a grant for a specialised bed waiting to hear back from, i am only 37 and feel like 90 this is only place i come to for advice i do try not to think about my ms as i am bad so i just enjoy my gaming right now.

Thanks Marie x