Hi Guys has anyone tried or been put on these? I start a months course of oral tablets tomorrow. Any thoughts? Thanks Deborah
Hi Deborah
At the very beginning of my journey witu ms the neuro gave me a course of steroids, but, unfortunately they done nothing for me.
Once it was determined that I had ppms he told me that steroids would not work, as they help with relapses, but with ppms you dont have relapses, so that was the end of them for me.
Pam x
Yes, I echo what Pam has said. I did find mabe for a day things were slightly better but that was it. I think they they feel better by giving u something even if it does xxxxx all for you!
Jam
Thanks for your comments Pam and Jam, will see how it goes. Deborah
Good luck with it Deborah… hope it works for you… if not, and they dx PPMS, you know we are all here for you. Take care, Pat xx
Hi Guys Starting second week of steroids, maybe need to give them the whole 4 weeks, but no improvement, if anything things have got worse. Mobility really bad, bladder not sure where the control of that went, must have at least three to four accidents a day. Fell out of bed last night trying to get to toilet, fortunately hubby able to get me back to bed. Finding it hard to keep positive, crying a lot but putting that down to the pills. Hope everyone else is having a better day. Thanks for listening Deborah