This is my first time writing on here and just wanted to get some feedback / thoughts confidentially from people who have experience of symptoms.
Around 9 years ago (I was 44 years old) and had to leave a fantastic career as had increasing and very embarrassing issues with my bladder which meant that I occasionally had accidents and could not be on the road as was in shear panic all the time about where the next toilet might be. It then extended to bowel issues and depression and following a visit to my Dr who was very concerned with some other symptoms that it might be cancer I had a rapid Endoscopy followed by a Colonoscopy, tests for prostate cancer etc. In the meantime I was put on medication for my bladder and after a year no better so had an endoscopy of my bladder and full investigation / tests. Nothing was found regarding cancer or anything physical anywhere in these areas.
I was referred to an NHS dietician and had to go on a programme of food restrictions as they then though intolerences but it wasn’t that either no Chrohnes disease etc.
Mentally I was become increasingly out of kilter with huge mood swings massively low then massively hyper and elated anyhow the upshot was nothing was found from the tests (these also included Thyroid, Diabetes, Heart, Cholestral, frequent blood pressure checks (which was the blood pressure of an athlete apparently!). My Dr said there was nothing else he could suggest and that was that.
So up to date… My bladder / bowels are always a nightmare I had to move into an office job so can get to a toilet very quickly. In addition over the past few years I have lost all interest in sexual relationships, my partner of ten years is completely devastated as its been over three years since the last time and she thinks I don’t love her anymore as prior to this I was the complete opposite. I can’t go out anywhere without thinking about where potential toilets will be and therefore it has meant I have had to refuse trips / evenings out sometimes as I just know an accident will happen.
Over the past two years I have developed what can be described as intense burning / needles in parts of my hands and forearms and for quite a few years I develop numbness in my fingers eg when driving and have to pull over and shake them a lot and wait until they feel ok again.
My partner takes the mickey out of me regularly as I find it impossible to sit still my legs keep twitching / moving as they start to feel really uncomfortable like the muscles are tightening up I get woken at night around 4-5 times to go to the toilet or because of sensations in my legs.
Now over the past few months I have been getting increasingly unstable at times whilst walking. It can happen soon after sitting down (or as when out the other day) I can walk for say a mile and then it feels like the ground is moving away from me and I am not connected to it at all and when this happens I have to lean against a wall or sit on the floor because I know that I am going to just collapse completely. I have checked my pulse when I feel like this and all is fine there. The other day at work I nearly fell into a load of equipment so lay on floor and put my legs high up onto a chair, I do not feel sick and the room isn’t moving above me it just feels like my feet / legs are not part of me (so hard to explain). I never feel like this when I am sitting down or just standing only when walking.
My partner is getting really concerned now so please if anyone can give me any thoughts on the above I would greatly appreciate it.
Thanks you, Charlie