I was given my diagnosis of MS, 4 hours after my MRI, which happened the day after I got to hospital. I had at least 6 lesions and my neuro was quite definite that it was MS. I also had a lumbar puncture after a few days and flew home and got the headache from hell. I should have gone to my GP but didn’t know about post LP headaches and how to avoid them. I know now, thanks to the good people on this website.
You are supposed to lie flat for at least a couple of hours after and drink old-style sugary Coca Cola - as much as possible. It wouldn’t stop me from having another, if deemed necessary. Mine was positive. I started Rebif as soon as possible and it has slowed down my relapse rate.
I’m a musician and teacher and I am dead tired right now. I have a big gig tomorrow and I am trying to limit my energy expenditure. One more choir practise (joined to make friends and find more pupils) and then the gig.
I find that stress makes my right leg numb(er) and fatigue causes horrible nerve pain. I try to listen to my body and if I can’t rest, then there are lots of good drugs to help with nerve pain. I take Amitriptyline each night, as my neuropathic (nerve) pain is too much to bear without it. If the pain is really bad, then I have a low dose of Tegretol. There are many other drugs out there to help with fatigue pain. I also take Fampyra, which has helped me to stand for longer until the arthritis gets too bad! With MS you do end up rattling with the amount of pills that you end up taking, but it’s better than the pain.
I once had a relapse that lasted for 9 months. It’s not unusual for relapses to last for a long time. My neuro back then didn’t like steroids, so I wasn’t offered them. Now, I can go to the hospital and be on a drip an hour later. I don’t have progressive MS, however, it can take years to discover this. but if you are having relapses, there are some new and powerful drugs to help to manage this type of MS.
I hope all goes well on Friday.