Hi, my name is Sophie and I got diagnosed with MS in May 2014.
I got rushed into hospital after collapsing at work. Previously only having a numb and tingling arm. So as you can imagine after my first MRI I was so shocked to hear I had MS. I then got discharged from hospital 4days later with a supply of steroids and I have had no support. I had no one to call, no one to ask what it’s all about. In some respects it’s wrong that I had to research it on google by myself. Thankfully I have found this site.
Anyway I’ll cut a long story short, on for the last two months i have been signed off work but I have progressively got worse. I kept getting horrible cramp, severe fatigue - some days I would sleep all day even after having a full nights sleep. My head aches have never left me. And some days it was a real struggle to walk.
On Wednesday I had my first neurology appointment and they have asked for me to go for a lumber puncture, and further mri’s with contrast as I am loosing sight in my left eye. So they can 100% say it’s MS. (Which I thought I’d already been diagnosed) It’s making me very nervous and upset, depressed and worried. I hate needles and I now need to have these procedures. Along with also being told I may need to have medication which involves injecting into my stomache.
I went back to work for a trial on reduced hours, I didn’t even last 3 days and I’m back home now feeling terrible. Not to even mention my worry on money and how I am going to afford living on SSP.
I would appreciate it if someone could tell me if I am worrying for no reason, but I’ve read so much and I’m now thinking I won’t be able to work at my job. It would be too stressful. I need some sort of light at the end surely. I’m finding coping with this so hard.