I’m not yet diagnosed, still under investigation.
Symptoms (began nearly 3 years ago and have become progressively worse, some newer than others):
Fatigue, widespread muscle twitches, bowel urgency and urinary issues, tingling/unusual cold sensations which creep down my back and forearms, headaches/eye pain/blurring, tingling/intense burning on soles of feet.
Today my partner and I decided that after all the Christmas and New Year indulgence it would be a good idea to get some fresh air and go for a walk. We live on the east coast of Scotland only 100 metres from the beach so we walked along the coastal path and back again which was approx 4 miles. During the walk itself I was a bit out of breath but nothing unusual or worrying.
When we got home I sat down with a nice cuppa for about half an hour before going to make a start on tea. However, my muscles ached so badly I could barely stand. My movement was slow and even the muscles in my arms, hands, chest and face (yes, FACE!?) were aching. Now I know that you do use your arms when walking but not to the extent where they would ache so badly that you couldn’t lift an empty pot or chop vegetables without wincing. And I’m certain the muscles in your face wouldn’t be overly used either (although they were used quite a bit when my husband nearly fell flat on his face in the mud and I was doubled over laughing).
I’ve tried to get some sleep in the hope the rest would ease the aching but I can’t get to sleep because of the aching! GGRRR!!!
Is it common in MS or an MS like condition for the muscles to be affected in this way? The aching just seems too extreme for a light walk.