This post is not about myself but a relative of mine who was diagnosed with ppms eight years ago. He is a 59 year old male, he can not walk and is doubly incontinent. He never married and lived with his elderly parents who are is only support network. He has been living in a care home since his diagnosis because the flat where the family lives was too small for equipment needed for him.
I saw his parents a couple of weeks ago and they are saying he wants to come home, his parents are totally out of their depth with his situation and do not understand what treatment he is having or needs or what support he can have. In fact they have lived a very isolated life and his mum has many social issues of her own, she fears going out and can not answer the telephone, she is reliant on her husband totally and there appears to be alot of mental and emotional abuse going on. He is very controlling towards her and from what she has said he ignores her for long periods of time.
The care home will only let them visit their son for 3 hours a day because they say that they are very loud.
It seems like a very tragic situation, the parents are in their eighties and very frail in all respects. Their sons visits are their only interaction with the outside world.
What i am trying to find out is that if my relative wanted to live at home albeit in a home big enough for all of them would this be possible. I am aware of the independent living model which in theory gives this choice to all adults.
The reality of it is that his parents fear professional input because they dont know how to communicate with them and i think that his mum becomes frustrated and appears to be aggresive.
They are totally lost.
Any help would be greatly appreciated