Im a relative of a 59 year old man with PPMS, he lives in a nursing home and im concerned about his care and him in general.
His parents who are both in their eighties have dementia and used to visit him every day now they very seldom go. He looks out out of his window looking for and one of the staff at the nursing home said he will soon forget about them which i find alarming.
He has no siblings and only the occasional visit from extended family. I went to see him on saturday and he appeared in good spirits although a little confused and forgetful.He suffers with terrible bed sores and i have never seen him out of his bed. He has recently had surgery on his tendons behind his knees because his legs are bent to one side. I dont know if this is a symptom of MS or because he is always in bed , or both. I am not aware of any pyhsio been offered to him.
The nursing home provide food, warmth and keep him clean but surely his other needs should also be met. I am three years younger than him and i have choice about what i eat, what i wear, who i see, if i want a relationship or return to education or not, or to socialise.
He is celebrating his 60th birthday in december and said he would like us to take him to the pub. Staff at the home say that he is waiting for a specialist wheel chair because of his bed sores. I dont think its unreasonable for arrangements to be made to visit his parents or anywhere else he would like to go.
Does living in a nursing home mean an end to meeting all his needs and his choice.
Any advice would be appreciated