Was wondering if you could give me (and others) some advice with this new PIP scheme please?
I only heard of this today on the news and have been looking it up since. I got dignosed 14 years ago with MS and as you all know things just get worse and worse. Its hard though, as every day / week is different. Some weeks I literally can not got out of bed anf others I feel, well ok (ish) the pain never goes away and nor do the other lovely things such as tremours, shakes, headaches, and having to use a tube just to take a wee etc. I try my best to stay strong and deal with this. One day I no doubt will need to use a wheel chair but try to stay positive and not dwel on that thought. I do feel quite useless to others a lot and decided to look into being a volunteer, you know put something back. Not sure if I’ll even be able to do just a few hours here and there, but wanted to give it a go???
Thing is, I don’t want to put myself through this, trying to be useful for a change to others and put something back if I’m going to get reassesed and lose this (what used to be DLA) money we NEED to help live on. I’m sure same as you all, we stuggle just to get through but the thought of losing this high rate DLA is so scary. Waiting a few years to see as well. The stress of this worry for us all is just too much. I NEED my mobility car.
Mobililty cars are used by people who need and deserve them, what wil happen now? Now we all dont and wont have proof of three further years of high rate DLA which is what you need to even get on the mobility scheme? Will the car Co pull out of mobility cars…see I don’t have a spare 10k under my bed to just buy another one.
Is this a pilot scheme, or defenite? I know new claimants from today will have to claim this PIP and understand that, but for us all whom are already on DLA we should just be switched and not have to go through the process and some Dr and office deciding if we should get money to help us live. Don’t they see what this will do to us all?
I understand cutbacks, but this is just going too far. The government just see “lets save and make cutbacks as we’ll get back into power” when what they’re actually doing is making things worse and no way will they get back to do this again to us all. They also don’t see what it is like having a disability like ours. How things change for us from day to day. It’s not as simple as a bad back or broken bone which is there or it’s not…our’s is different and I am so worried what this will do to us all. The way things are for me personally even on high rate is times I can’t eat or have any heating on as it is. I can’t work as I am just too sick, what is going on??? I used to be proud and happy to live here, the goverment used to look after us to a point, but now, now we’re just a drain by the looks of it…WE ARE NOT we are here, we are important and this isn’t fair or right.
Even “if” we manage to get this PIP we’ll be getting much much less than what we’re now expected to live on…So do I do a few hours trying to make a difference and see if I can take my many pain killer, be in agoney, try to hide my shakes, go through the pain barrier that we all live with, feel so tired I could sleep for a week, pretend I didn’t just fall but act like I wanted to land against the wall…or stay at home, feel depressed, feel useless but be safer when trying to claim this PIP??
Rant over, thanks guys