Thanks for replies. I think part of the decision must have been based on the fact Rachael is a teenager and lives at home. I cook and clean, do the shopping, take her to and from work to help her manager her energy and as her mum it is what is expected. If she lived on her own things might be different. There are still days when I have to help her shower, get dressed and even feed her on her worst days. These days don’t happen too often now thank goodness but they still happen, even on a good day Rachael is exhausted and is in bed for 7pm every day. She hardly goes out apart from to work, she maybe goes out socially once a month, this is to the shops on a weekend day which she pays for by spending the rest of the weekend in bed. She is doing so much better than she was when she was first awarded this ie. she was bedridden, could not shower, dress or feed herself at all, could not work or leave the house due to vertigo, sickness and fatigue.
She is also learning to drive and should hopefully be able to drive herself to and from work soon.
I believe because I do everything for her that is the reason she no longer gets PIP.
It is what it is. She has MS, her life is limited, she does not live the life of a carefree teenager, she hurts everyday, she is fatigued everyday and gets a scary treatment every month so I don’t know what more she would have to suffer to get some form of benefit.