I am glad you started this post. I am also like this and people dont understand, especially hubby who thinks i am weird when i want to be in my own company, dont get me wrong i enjoy my daily swims and the folk that are there but also like to go back home and have a coffee and a rest, guess one of the things that occur when you have this condition, saying that hubbys best mate is the most ignorant man I know and i utilised MS to say couldnt be in his company any more, yes it does have its uses.
its great to know its not just me me being a miserable old fart xxx
I’m accused of being that ALL the time.
I probably am, 'cus I’m sick and very tired of my overactive mind being stuck in this crap body that I’m having this never ending battle with.
Don’t let the b******s grind you down.Denise, and tell them all to sod off like I do.
Colin
this is an interesting post. I get this to some degree, in that i cannot cope in busy places, or deal with too much going on at once. But, on the other hand, i NEED to hear some background noise, not loud, just some low level noise of some description, like the tv, or music. I just CANNOT cope with SILENCE. I also really can’t stand being on my own, which make living alone so unbearable. I litterrally feel like i’m going insane if i have been on my own for half a day or more. I think it must be some sort of unregonised mental illness, love Bex xxx
Hi Bex, please don’t worry, people are just built differently, many many people prefer being in the company of others rather than having a lot of time alone . Some people like savoury food and others love sweets!!! It’s just the way we are made! Xx
Hi Bex, I don’t think you have a mental illness. You are just on your own too much - people are naturally clubbable. They are meant to be together. As a younger person I was never any good at being alone - I used to feel really odd if I spent a day alone. As I’ve grown older I cope much better by myself but what I think you are feeling is the natural loneliness of someone who spends too much time alone! I wish there was something I could do or say to help but please know that we are always here to chat if you need to do so! Teresa xx
Hello everyone,
reading your posts was like a big “hug” of acknowledgement that that I am not alone in this type of experience. When I tell people how I can begin to feel if I’m out anywhere potentially busy or socialising at home or out with family and friends, they often give that kind of ‘knowing smile’ of understanding but I know they really are being polite. My family and friends try real hard and I love them for it and over the years have become used to me declining invitations to events that I know will make me uncomfortable. Laughing makes me exhausted, and everyone who hasn’t witnessed it’s effects on me look at me as if I’m mad!!. The sad thing is I’m a great advocate of laughter and I miss having to control it’s existence in my life. But I still laugh, and occasionally go the whole hog and have great nights out with my friends or family as long as I’ve planned ahead and make sure I’ve the next day off work to recover. Other times I take my leave early but still feel I’ve not missed out.
Over the years this has made me somewhat of a "stop at home"but I work 30 hours a week and that gets me out, but that is strange too as dispite working in a busy environment i’m rarely bothered by it unless I have to do anything for any length of time in the departments office and then I’m away! From the moment I start work I focus on what’s to be done and I concentrate on that until my working day is over and I have to say it is probably why I’m usually very tired when I get home and that in itself contributes to my hesitancy in socialising but I have 3 adorable cats waiting for me when I walk throught the door and they understand me perfectly.
Shopping can be a nightmare so I try to minimise it but the one thing I would love to do is go away for a few days and people say “oh just go” and then are bemused when I tell them I would need a person with me should I have what I have endearingly named one of my “ozzy” moments. These moments have complete disregard to where I am or what I am doing but when they strike my speech becomes slurred, I take on a glazed eyed expression and my brain disengages from everything going on around me, the only thing left functioning with any clarity is my eyesight so I can see quite clearly the expressions on peoples faces, I can’t begin to tell you how many times I have been stared at by checkout operator’s as I’ve packed my shopping in a haste to leave a supermarket following the sudden onset of an “ozzy moment”, it’s like I went in to buy milk and by-passed the lot and headed straight to the wines and spirits helping myself to a few snifters. I look and sound intoxicated! bit embarrasing.
But I know in my heart of hearts I’ll get my break away someday soon. My life dispite MS is good but it’s still great to find an empathetic ear from people who understand.
Thank you for listening
Joysee x
i’m the same. i never used to be like this but now it’s a choice of staying in a busy environment or passing out.
the trafford centre makes me feel physically sick, the lighting and the sparkly floor make me feel weird and the number of people is just unreal.
small children make me feel like i’m going to fall.
pubs are horrible now because of all the different conversations going on.
so its just me and my monster
carole x
I too am exactly the same! I’ve got an engagement party next Saturday and it’s the son of a really good friend, so I’ll know everyone there (and they all know about my MS), but I’m dreading it! I know that after about an hour, I’ll want to go home and just zonk out. I’ve already told my friend that I’ll probably only last about an hour, so hopefully they won’t be too surprised when I leave early.
I can also relate to the children thing! I don’t have children of my own but have lots of friends that do. They have all been to our house in the past many times, but I’m dreading the next time they all converge on us, as I know I’m just not going to be able to cope with them all. Should I tell them, so they know what to expect? They are all aware of the MS situation but I don’t want to upset them by saying I don’t want the kids to come round (I do want to see them, but not for too long!).
Glad I’m not alone!!
Sarah
x
I feel the same and I have two small children and numerous friends of theirs in the house. I send them to play in the garden a lot!
Hi, yes I do know and agree with what you say.
But my condition is worsened as I have a deaf right ear.
I often just nod or shake my head when I havent a clue what folk are saying.
I could get myself into a lot of bother, eh?
I sometimes feel worn out just conversing with people.
luv Pollx
Oo this has been helpful as get that and good to see I’m not going mad. I struggle to multi task these days and find it VERY frustrating! Have to double/triple check things! Thought it was my age!
Hi Gladys,
You have joined a group of “conversation stoppers” and lovely forgetfulls!
I am regularly seen at work walking backwards in an attempt to remember what I was initially walking forward too do. Luckily the area within my home is much smaller so I usually ask one of my cats if they know or stand still until whatever I was about to do comes back too me.
I rely heavily on post it notes as I forget too look on my calender and my chalk board that are both filled with things too remember!!!
Perhaps my age has something too do with it but I think it’s cause we are all just a little bit special.
Happy Days
Joy x
Hi I’m normally pretty resilient to this. A class of 30 9/10 year olds builds that up! On holiday last year the restaurant had lighting and ceilings at lots of different levels and made me feel faint, wobbly, woozy and sick to my stomach. Saw my GP when I returned and she related it to my enteric nervous system probably being worsened by the MS. Only time it has really affected me though but tend to be too tired to go clubbing these days…! A x
you know there is 33 replies to this what does that say, plus sorry it is a good excuse for not being in folks company if you dont want to , i.e back to my first mail regarding hubby’s pal.
Hiya.
Exactly the same for me. Awful. My head just spins when there are a lot of people around. The supermarket is the worst. If it is. really busy with lots of people talking and the tannoy going off every few seconds. My head just spins and I can’t wait to get out.
Thanks for posting this. I thought it was just me.
Shazzie xxx
Yep with you all on this one. I thought it was just me!. I often feel like I live my life wading through treacle. Physically and emotionally.
Sara