hi
my name is Kim I’m 49 from Southampton with SPMS , full time wheelchair user now looking to make friends.
i have 2 sons 28 and 22, 2 grand daughters, a wonderful husband and 3 gorgeous Westies Would łove to chat.
Have a positive attitude and enjoy talking.
Hi Kimi and welcome to the forum. I’ve found visiting here very much like making loads of new friends. It’s great because they all understand how each other are feeling and we can chat about anything, ms related or otherwise. There are some lovely people here and they’re always available for a chat or to help out if we’re struggling.
I hope you’ll come to appreciate both the forum and members as much as I do.
Cath x
Hi Cath and thanx for replying I do find it hard to meet like minded people and look forward to hearing from members.
how do you tend to spend your days? X
Hi Kimi and welcome to the gang!
Cath is absolutely right. Coming on here you never feel alone. We’re a very supportive and friendly bunch and are always happy to have a new member. We have PPMS and SPMS users and some in limbo.
Post about anything, from symptoms to favourite chocolate, children and grandchildren, bowels and bladder, relationships and sex and lots of us have pets. In fact the list is limitless and nothing is taboo.
It can be very isolating living with MS but you will always know you can come on here and chat, or rant, or cry or have a good laugh.
I’m 62. Live in London with my gorgeous cat Dickie. Have a 43 year old son and 10 year old grandson. Can walk around my flat and use mobility scooter or wheelchair outside.
Very pleased to meet you & look forward to seeing you on here often!
Pat xx
Hi Kimi,
You can add me to your address book. I am a 60 year old (going on 21) male and I live in Epsom. I’ve got a lot to say about MS.
First, and most importantly, I read the posts very carefully and I “listen”. This Forum is probably the most valuable resource anyone with MS will ever find!
I only became “active” this year but already I feel that I have found my “family”.
The MS Family is nebulous, intangible,caring, knowledgeable, with a stratospheric emotional intelligence and very, very real.
Please come in, the water’s lovely. We want you to join us.
We also have a good chuckle. Belly laughs even, at the sheer of our disease. Warning: I don’t pull any punches when it comes to writing about MS. I don’t use euphemisms. I call a fart a fart and when I’ve pissed in my pants (like this morning), I don’t brush it under the carpet (that would be absurd, but I might just try it, one day, just for craik)
I’m ready. Are you?
Anthony. (Leo/Year of the Goat/uncircumcised/atheist/married to a Goddess.)
Thinks: … That makes me sound like a Druid. I’m not. Yet.
Hi Kim
Welcome! We’re all pen pals on here .
The only rule is there are no rules (except see sticky at the top, of course, sorry mods).
Make us laugh, have a moan, tell us when you’re at your wit’s end, swap stories about the beast that is MS, we will understand 'cos no-one else really can.
Kev x
Hi Kimi and welcome
i am sure you will soon feel part of the ‘family’ i love the people on here.looking forward to your posts.
J x
Hi Kimi
Welcome to our ‘gang’ I am sure you will soon feel at home on this forum everyone is lovely and friendly, always willing to offer advice where they can, or lend an ear if you need to rant.
Look forward to seeing you on the forum, take care.
Pam x
See Pat…my very first like has come to you!
pollx
Hi Kim, they even let fok like me join in.
I dont have MS (anymore!)
I was wrongly diagnosed with PPMS for several years, before they labelld me HSP.
luv Pollx
oh my goodness,what a welcome ,i am overwelmed with all the warm welcomes from every one and i will try to personally answer each of you , although im not quite sure how i will go about this . I suppose i will just have to try and navigate the web site and i will persevere although it take me ages but ive got plenty of time ! i am a very slow typer , once again thank you to every one for such a lovely welcome and hope to speak to you all very soon 
Thanks honey. Hope you ok?
Pat xx
Kimi you don’t need to reply to us all individually. We’re happy with a communal response! Why make life harder than it has to be.
Pat xx
Hi all
i just wondered if anyone else has had a Baclofen pump fitted and if it was a help or hindrance to them?
kim x
That would work well as a new thread Kim. If you put ‘Baclofen pump’ as the title you should get responses. I seem to remember a few people on here use them.
Pat xx
What is a Baclofen Pump as I take 50 mg of Baclofen throughout the day as I have ppms but to be honest I am not sure it’s working. I have severe mobility problems. Furniture walk in our bungalow and have to use a wheelchair outside.
polly x
Thanx Pat good idea thanx for the advice x
A Baclofen pump is inserted in my spine and it feeds Baclofen in quite a high dose to help with my spasticity. Before the op, I was like a-plank of wood!! Now it’s much more manageable and it makes life a lot easier. I can go on my theracycle which is a passive excerciser that does all the work for me as my legs don’t work at all anymore. I’m surprised you haven’t heard of it before .
kim x
No but to be honest that might be good for me because like you my legs are like planks of wood and are so stiff I can hardly move them
polly x