Pain

Everyday living
1

Hi,

I have not posted in a while due to very busy times with uni, work, family etc. I was diagnosed with RRMS March last year and began Tysabri around May/June. I have since developed quite a few infections and felt quite awful on many days - although nothing I would consider a relapse rather flares or the damage from previous relapses.

I have been experiencing pain which my physiotherapist thought could be pain sensitivity. It does not take a lot for my body to ache. Even if I am just holding something for a while like shopping bags etc I can end up in so much pain. I do my best to pace myself but my part-time uni course and job mean I do have things to do - which I need for my well-being as they have always been so integral to me. However I am really struggling with this pain, I take ibuprofen sometimes or regular doses of paracetamol. I try to use heat or cold to soothe if appropriate. I wonder if anyone else had any ideas or experiences? The pain is not all day every day but I find it quite limiting when it is there. It is generally my arms, legs and back that ache the most.

Many thanks for any thoughts!

2

Hi, do you have an MS nurse you could speak to about this pain?

It depends what type of pain it is, for a drug to be tried.

I take amitriptyline for nerve pain. Pregabalin is another effective pain killer.

Other replies may be able to help more.

I know how debilitating pain can be and how irritable it can make you too.

luv Polx

3

Hey,

Thanks for your reply!

I am due to have a neuro app in a few weeks and hoping to see my MS nurse at my next infusion. I think beccause it’s pain sensitivty it may be more muscular rather than neuropathic - I;m not quite sure how you tell though!

Thanks again x

4

hi balloon

i take several neuropathic pan killers: baclofen, tizanidine, amitriptyline, pregabalin.

usually take them in the evening when i’m not likely to be driving because they make me drowsy.

i understand what you mean wondering how to tell if it is neuropathic pain or not.

i wonder if i’m starting with arthritis because my mum did at my age.

anyway the meds i take are helping somewhat.

carole x

ps. your gp can prescribe the meds i listed.

5

It is still surprising to me that what i am about to suggest is often quite frowned upon… but i am going to suggest it anyway, if only as a potential alternative:

cannabis.

I no longer have an inclination to discuss moral objections and points of legality on this subject.

I have researched the history and rationale for its prohibition and i welcome the growing appetite by which even the Americans are now welcoming it as a commodity for medicinal and recreational benefit.

I have seen first hand and personally, the benefits of its compounds and have witnessed none of the fearful consequences often touted by tabloid media. I hope it will one day become a widely accepted and mainstream therapy for consideration.

In the meantime, the very best of luck to you.

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