Hi Sheep and welcome to my twilight world of insomnia. More than an hour’s sleep is good for me. Can’t lay on my back at all and if I try on my sides I get numb arms and shoulder and neck pain. Have a memory foam mattress and pillow but still sometimes I just want to cry so I know exactly what you are feeling. I move from chair to bed and back again but mostly end up sitting in a high backed chair with feet up. I read lots and listen to music and try to relax. I don’t have any magic answers I’m afraid but if the good folk on here have any bright ideas I am more than willing to try and I guess you are too. Just wanted to reply and let you know you are not alone.
Hi yes welcome to my world, i have a post on here about it, as lately mine has been so painful at night i could scream with the pain, thank god for diazepam is all i can say.
Hi - yes I have this at night I hate it !! It’s such an awful feeling and so hard to explain to others - I take ampitriyline, baclofen and 2 30/500 co codamol helps a little hate nighttime.
Hi folks many thanks for all your replies & i thankyou for your time , yep Noreen i have an apt in the post for the pain clinic and physio which im happy as my Dr said he wouldnt send me for more physio as the relief period was so short i think the last time i had it on my neck it lasted for 3-4 days but they were pain free days in the neck anyhows.
Also my MS Nurse is going to look at my meds as at the moment ive got to the stage where 30/500mg codine bearly blocks anything and im on the 8 a day and as someone stated above thank god for Diazepam as it kinda works but everytime i order a repeat i get stuck with the same process your doctor will need to call you to discuss this after 1 Doc said i was being too much of a martyr by not taking it enough then another 1 says 20 tabs is alot in a month.
I have a good feeling about my MS Nurse as she is the 1st person i have seen in 14yrs that has made any sense my Neuro was rubbish and i wish i had realised this sooner but the trainee i saw who put me forward for a nurse was bang on and to hear someone say i could see from the minute you stood up its not Parkinsons or Dystonia was a feeling of overwelming that at last someone can see the pain so hopefully i will be on the right meds soon.
Back on track nights are awful and its a blessing when i finally drop off and for the 1st 5 mins when i awake as long as i dont move i feel normal again which is like heaven , have a good day folks whatever you may be doing and again many thanks for your time
I had the same problems for years and then 2 years ago started Pregabalin. I needed to take tiny amounts and built up to 150mg x 2 per day. I sleep reallly well now without sleeping pills. The tremors, buzzings and pressure sensitivity (pain) all reduced considerably. The Pain Clinic has been great as have my Rehab Consultant (although why we cannot have telephone consults is beyond me).
Fin gers crossed that you get what you need soon as being awake all night is misserable. I still have odd nights when my brain won’t stwitch to sleep mode for hours and have not bottomed that yet. Fortunately, this is only a couple of days a month.
Best of luck
Moira (I am a fibre artist using wool as my main material - so thanks sheep)
but i will ask ty , i had