I was diagnosed with Relapsing/remitting MS around 5 years ago after going temporarily blind…with Neuritis…(scary stuff)
I have since made a good and steady recovery and have 90 percent of my sight back and have been told that as there are no additional lesions appearing on my MRI scans I have been almost signed off of the program…with only annual visits.
This is great for me as it affects people so badly, I do feel I got off lightly.
However I experience severe muscular and bone pain, on a regular basis. Not in the joints tho , almost like it’s inside the bones or in the ‘meat’ of the muscles… it’s in my arms, legs and neck and I get some really nasty headaches which start in the eye that was most affected by the neuritis and spread across to fill my head.
My Support nurse has told me that these symptoms are not related to MS
and therefore cannot recommend any form of therapy/pain relief other than Paracetamol which doesn’t really work…
Does anyone else experience this kind of pain? am I being a hypochondriac? the pain is genuine and I don’t let it interfere with life just pause til it’s gone however it is really tiring sometimes, is this linked to MS? any help would be appreciated .