The last 6 months has seen an increase in my symptoms, especially in my legs and arms (neuropthatic pain). It has really got me down, so much so I was desperate to speak with either my MS nurse or consultant. I emailed my nurse twice and heard nothing; I ended up faxing my consultant’s secretary and eventually got a reply. It was one line long (after a very detailed letter from me), saying that he was going to refer me to a pain clinic.
Now I acknowledge I have tried most of the anti-epileptic drugs used for neuropathic pain over the last 10 years. They work initially then become less effective. But part of me feels I’m being “fobbed off”. But am I being harsh? Is, perhaps, a pain clinic the best place for me? I’d welcome your thoughts. I just sense that he sees I can walk and thinks “she’s OK”…