Well saw the MS specialist yesterday. Just to recap - last time I saw the neuro he was quiet convinced everything was pointing to MS but he needed more evidence as previous MRI’s had only shown non-specific lesions. So after my last check up I had a full battery of tests from evoked potentials, MRI to LP.
On meeting yesterday the neuro said - great news all your tests are negative. I said great - of course I don’t want to have anything wrong, He asked how have you been since the last visit I said fine my previous symptoms from July have gone he said your symptoms seem non-specific - but when last he saw me he said they all sound spinal! He was like great well I think we should either review in 1 year or discharge. I wasn’t expecting this as I thought surely after saying you were convinced it was MS and wanted to get me on DMD’s we should have some conversation about what it means: MS, something else neuro or something none neuro even. I turned to my partner to discuss re 1 year review or discharge mentioning concerns that the GP wasn’t that great and the neuro then said well in that case a one year review - excellent bye and turned and started writing.
I don’t really know how to feel now. On the one hand the last two MS specialist have gone on about MS but there is no evidence as yet. I don’t know whether the neuro saying a review in one year means he still thinks this is MS or whether he was in a rush just to get me out the door. My partner thinks I should just get discharged and not see anyone for a few years so I can then purchase medical insurance should I have issues in the future as he feels private is the way to go. I just feel a bit lost - I’m feeling great health wise at the moment. But my concern is over the last 2 1/2 years I’ve had a 2 episodes of stuff once a year (though between the episodes once I have recovered I have been ok apart from first ever episode which took a one year rercovery. ) so what do I do when I run into trouble because the GP’s aren’t that great they don’t really have enough knowledge. With the last episode my GP said the hug, bowel issues and numbness were down to IBS. I was in agony with the hug and almost carted myself to A&E - what I needed was something for spasm not to be told to look at fodmaps and take some over the counter IBS stuff which I did try and did sod all.
Just want some guidance on where to go from here. Do I just leave my one year review and see what he says then but what else is he really going to add? Do I get discharged and see how things go? Do I look elsewhere for answers - but I’ve had quiet a good serious of tests over the last 2+ years. I don’t want to waste people time or come across as a hypochondriac.
Any thoughts greatly appreciated.
Reemz
X
