I have posted once before on here when everything started to kick off around 6 weeks ago. I was diagnosed with Optic Neuritis 6 weeks ago after my vision started to deteriorate over the course of a few days and ended up being completely white with no vision at all.
I was prescribed oral steroids which I took for 5 days and it did seem to improve things a little but since then they have plateaued, actually I would say worsened a little bit. My vision is like looking through a cloudy window and nothing is sharp and sometimes at its worse is a little blurry; however I can read most of the chart in the dr’s office which is obviously some improvement.
I can also ‘feel’ something on my eye - almost like a lens is always on my eye and I have headaches persistently.
I had an MRI of the orbits (and the radiologist said they would take one or two of my brain) and have a follow up with the ophthalmologist this Thursday.
I am very concerned about MS, they did mention it to me as a possibility but said it was likely too early to tell, but I am confused as to why they didn’t perform a full brain MRI to check for any signs? My other symptoms include:
head and neck aches
joint aches, knees and wrists
pins and needles in feet, arms and legs and a crawling sensation on my scalp and sometimes face
leg weakness - this has improved slightly but they just don’t feel as strong
I feel conflicted about my eye - I read that most of the healing is done within 5 weeks and it’s likely it wont heal any more after this time. However the doc said it could take longer - however, now that I can read the letters on the chart, will they assume the recovery has happened and this is residual damage? I have noticed that heat/exertion makes it worse and it gets worse as the day goes on.
I am so so afraid it will happen in my other eye and I will go blind / have much reduced vision.
It’s worth saying I suffer very badly from anxiety - particularly around my health so this is such a scary time for me.
Has anyone had a similar experience or can you offer any advice to help the healing process or just any words of support/reassurance or comfort?