i actually did mot know where my hand was . Weird sensation. It has calmed down a bit but theres now a ’ burning ’ sensation in my wrist . I’ll call tomorrow
Hi. Called my nurse who said just make a note of it. If its not a frequent occurrence they probably wont do anything and not a warning sign. It may be due to stress and pass shortly. If not then get back in contact.
i have read quite a few posts here about sensory issues and have never fully appreciated how disconcerting it is to not know where one of your limbs is until the last 3 days when i really , at times, dont where my left hand is.
its really getting to me that this effing disease is getting real .
There’s something called proprioception which is where you can’t tell what your arm/leg/toe etc is doing. When you have a neuro or a physio examination and they use test your feeling with a pin when your eyes are closed, or bending your toe backwards and forwards and ask you which they are doing, that’s to test proprioception.
So for example, my right leg is rubbish, I have foot drop on the right side, severe hip pain and I can’t make that leg do anything. However, I know what that leg/foot etc is doing. Whereas, the proprioception on my left leg is lousy. I can move it just by deciding to do so, most of the time (imagine that, the clever thing) but, I don’t always know what it’s done or where the foot has landed.
The physical ramifications of this is that the little bit of walking I do (with FES on right leg and a walker) is sometimes sabotaged by my left foot being in the wrong place, and I can’t always manage to look down at it to see where it is.
It sounds like what you’ve been experiencing is a proprioception problem with your left arm. Hopefully it will recover.