Not diagnosed yet have every symptom

Hi, I’m new here. I’ve done loads of research on ms and I’m convinced I have it. For years my symptoms have been getting worse, nerve pain, migraines, fatigue, chronic vertigo and balance problems, bladder issues (I have a sacral nerve implant to help with my incontinence), muscle spasms, pins and needles in my hands and feet. I am seeing a neurologist and he diagnosed me with vestibular migraine and Ménière’s disease and chronic migraine. I have had a ct scan as I couldn’t have an mri due to having an implant. Anyway, I actually work for the nhs and work in my neurologists department so he saw me at work last night with the results of my ct scan and there is a black patch on my brain. He asked if I’d had a stroke which I hadn’t but he wouldn’t say what else it could be. He told me not to worry because it wasn’t a tumour but now he wants me to urgently have my implant removed so I can have an mri asap. I mentioned ms to him but he said not to worry and we’ll see what the mri shows. I’ve researched that ms can show black ‘spots’ on your brain so now I’m worrying even more. I’m currently waiting for Botox in my head to cope with the migraines. Does anyone else have all these symptoms, I know that’s a silly question. Thank you for any replies in advance x

Hi debs, did you get the results of the MRI?

I am going through a similar process at the moment but I have had my scans and they have showed nothing on them.

However I have so man symptoms of MS and it’s daily as well so it’s affecting me quite a bit.

What are your symptoms?

Thanks :slight_smile:

Hi Paul, yes I’ve had the mri results. I have several brain lesions but my neurologist said not to worry as the meds I’m on should control things from getting worse. That’s all well and good for the lesions but I’m still having full on symptoms of MS and nothing is being done. I had Botox for my migraines last week so I’m hoping that is going to help. I’m still getting daily vertigo, dizziness, fatigue, I’ve having cbt therapy for my depression and anxiety at the moment. I am constantly in pain from various parts of my body and it’s all just getting too much. My original neurologist is off right now so I’m seeing a different one and he isn’t entertaining the idea of MS. I hope you get sorted and find out what’s going on with you

Hi @Debs67 what meds are you on?

I’ve been through a journey this year, seems two neurologists and had brain, c spine and thoracic spine scans and it hasn’t showed anything.

I’m wondering how long does it take for MS Lesions to show?

I have so many symptoms and it has now affected my life, my relationship and been off work for different periods of time.

What did the neurologist say the lesions where then if he’s not concerned?

Hi Paul, I’m taking so many different medications it’s unbelievable. I had a heart attack in my 40s I’m 56 now so take lots of meds to keep my heart going. I take sumatriptan for migraines as an emergency med, betahistine to help with vertigo attacks, naproxen for the migraines, blood pressure meds for my blood pressure but my neurologist has changed them as he said it will stop the progression of more lesions. I’m in constant pain with nerve damage which he says is all related, I have a sacral nerve implant because my bladder isn’t functioning properly which is a sign of ms too. Last week I had my first Botox treatment in my head and neck to help with the constant migraines and head fuzz. He said some of the lesions were age related which I find it hard to believe and the shadow on my frontal lobe looks like stroke activity but he said not to worry due to the medication controlling it but honestly I can’t help but worry so I know exactly how you feel.

It’s so worrying everyday. I’m 32 year old male and it’s effecting my whole life and relationship with my partner and everything. I have burning and tight muscles in my thighs. Nerve pain. Balance issues and light headed and dizzy. Tingling and pins and needles. Memory and brain fog. Scans all normal but just not convinced I seem to be better worse and worse with no explanations :frowning: it’s horrible every single day