No support

Hi everyone my mum has progressive ms and I provide daily care, it’s hard.

I reached out to family today and after years of doing the daily care alone and was met with “everyone only reaches out when they need something” I could cry!

My mum is being financially abused by my brother and I was asking for help with telling mum that it’s ok to say no and was met with this response.

I have a child and I have personally pumped £2600 in my mums account in less than a year, I want to run away.

I have no friends, nor does my mum and her ms nurse was made redundant in lockdown and the hospital never up kept the 6 monthly appointments so she’s been kicked off of the list :frowning: she was told she’d have to go through the consultant and new scans which she has refused…I won’t lie, this ms nurse sounded younger than me and was incredibly rude when we tried to get an appointment and as an old school Londoner my mum now won’t accept help :woman_facepalming:

I don’t no what I’m saying, I’m just hoping I’m not alone here and someone can relate…I’m so lonely here with this situation.

Sorry for the rambling, there’s much more I haven’t said because it’s it’s not fair on you all.

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@stephll30 I am so sorry you and your Mom are in this situation and going through this struggle.

I haven’t really got a lot to offer in the way of advice but just wanted you to know I hope things will get better for you both and you get the help you need.

Have you tried reaching out to the MS society helpline for some practical help and advice?

Hi @stephll30 it sounds like an awful situation for you and your mum to be in. Getting no help from the rest of your family is hard enough and with no friends either, makes it even more of a difficult situation. As @Cavworld said, you could try the ms society for their help and advice in the first instance. If your brother is abusing your mum financially, that in itself is a crime and needs addressing. It’s something you should ask the ms society unless you wish to seek legal advice regarding that issue, if you can’t make your brother see that it’s not right. It is difficult where family is concerned. Things could escalate.. escalate in a faster deteriorating relationship with him, if he can’t see that it’s wrong and you were to pursue it. Sending you and your mum much love and best wishes in sorting out, not just the best for her but, the best thing for you too.

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Really sad to hear the difficulties facing you and your Mum. Do you know if your Mum would be eligible for support and help from local Council services ( my Dad in his later years used to get someone coming in to help with general housework). Similarly with daily care - have you explored NHS services.

I know it’s hard but if your Mum gets help and support from you then she might well resist any support from the Council, NHS etc.