I’ve been a bit quite recently but have been lurking. But I felt the need to get something off my chest.
my Gp referred me to a unit which specialises in neurological conditions and I was given a MS specialist nurse who I saw every 6 months, my neurologist discharged me into her care two years ago, she retired last year and was not replaced. So now I’m left without support!
My Gp always failed to acknowledge any symptoms as ms related so I stopped going to see her years ago with anything that I thought might have been symptomatic of ms, she described it a quiescent which in fairness it was relatively but because I started to feel myself deteriorating I finally told another dr at the practice who sent me back to a neurologist to get another MRI (I hadn’t had one in over 20 years) after some steroid treatment and three annual visits he discharged me into the care of my MS nurse, ok he wasn’t too know she would retire within a year and not be replaced. But I’m seeing my go later and I’m thinking should I ask if I can see another MS specialist nurse? I don’t actually know if there is another service near me.