in july 2013 i saw my nuero who said she wanted to see me in four months time as my ms has started to progress more quickly then she had hoped.any where its now may 2014 and still no appointment.despite numerous phone calls to the hospital from me my gp and other medical help i still have no appointment.all i we get told is they are very busy and that they have not forgotten about me.thats a great comfort to me when i fall down or can,t swallow properly.i was just wondering what the average length for waiting for an appointment is.i live in Leeds and each time my appointment seems to take longer to arrive.whats the rest of the uk like.
take care all xxx
My first neuro took 6 months to see me to give me the results of my MRI scsn and then said he’d see me in a year’s time - that was last May. I was so unimpressed I asked my GP to refer me to another neuro. I saw him in July and he ordered tests. I had the last of the early December snd soon after got an appointment through for late January. That was when I got my diagnosis and he said he will see me again in 6 months, so I expect that I’ll get an appointment in due course for July.
Having agreed with my husband that we didn’t expect my original neuro to see me this month as promised, I was pleasantly surprised to get an appointment letter. I took great delight in cancelling the appointment and telling the neuro secretary that I am not his patient anymore!
I am in Lancashire.
If I was in your shoes, I would be asking my GP to refer me to another neuro and I would be considering putting in a complaint to the hospital.
My last 2 neuro appts were made after I rang and spoke with my MS nurse with new symptoms. Do you have an assigned nurse? They are the gateway to a speedy response.I’m under the Walton Centre Liverpool they have a relapse clinic once or twice a week for exactly what you are describing, you may be given a time for telephone appt first with nurse and should arrange for you to be seen.
Pauline xx
My first neurologist was abrupt and appeared disinterested but at least he saw me every did months. I went straight to a dx of SPMS, which by definition means I was once RRMS, that would be when the medics were insisting there was nothing wrong! My second, an ms specialist, saw me after six months, then nine, then twelve, then eighteen months between appointments. As I was making a one hundred mile round trip to tell him I’d got worse, for him to reply I’ve still nothing to offer you, I asked to be referred back to my local hospital. Neurologist number three saw me twice, twelve months apart and discharged me on the basis that with SPMS he can’t/won’t do anything for me there’s no point wasting any more time on me. It’s not because my ms isn’t affecting me much. Without going into detail, I can’t live independently, drive, walk, cook etc so that’s not the reason. At least you will get an appointment, but I don’t suppose that helps much or makes you feel any better right now. I live in north west England.
I was diagnosed in June 2012 and still have not had a follow up appointment. I presume this is because my symptoms are mild - just as well as it doesn’t seem that there are enough doctors out there anyway.