Hi gang, not good news. Poor Nina is having a truly terrible time.
For some months now it seemed as if Nina’s SPMS was progressing in leaps and bounds. Her mobility got even worse than usual, her fatigue & weakness was through the ceiling and she’s had the most awful insomnia. Many nights only getting an hour or two of sleep.
Anyway a few weeks ago she had a routine blood test and it turns out she has a serious level of hyperthyroidism! She’s been put on beta blockers over the Xmas period & this month she has to go to a specialist to have a radioactive injection to make her thyroid under-active, & will then have to take drugs for that for the rest of her life.
The radioactive injection means that she can’t be around children or animals (her beloved dogs) for 3 weeks (actually I think it’s even longer…sorry my memory is letting me down) & can’t even kiss anyone or sleep in same bed!
Even after that it’s going to take a good couple of months before she starts feeling any benefit.
Apart from all the other symptoms which have not improved at all, she has chronic diarrhoea. Everything is going straight through her.
Anyone on here with experience of this with hyperthyroidism?
She’s worried that with the diarrhoea being so bad she might not be able to have the injection. Anyone know?
I think she’s worried that what she’s read on the Internet (site recommended by her doctor) does not mention the diarrhoea being so chronic. Her husband is phoning the GP again on Tuesday when surgery reopens.
She is too unwell to write this post herself & has given me permission to do so.
Apart from any practical / medical advice, I’m sure it will be a comfort to read messages of support. She is extremely poorly & of course life is very hard for her right now.
It’s very easy with MS to blame everything on it, but it goes to show how important it is to get things checked out. That’s no judgement on Nina. Even her doctor thought it was her MS.
On the positive side, hyperthyroidism IS treatable…so in an odd way it’s good news as it’s NOT her MS progressing. Once she has the treatment she should be able to get back to how she was before this nightmare began.
Thanks gang…& Nina, sending you lots of love and hugs.