Well after 3 years of trying i finally look like i have MS found out today so thought id jump on here and say hello. Not sure how i feel about it at the moment
Hi there and I think it takes all of us sometime to come to terms with a diagnosis of MS. From what I remember , after my diagnosis (18-19 year ago) it took me the best part of a year before my mind and feelings calmed down and dropped a gear of two . I think there was also a horrible period of ‘grieving’ for the loss of an imagined future as a fit and healthy guy. I’m guessing that you must be in the process of starting on a Disease Modifying Treatment of which there is an increasing number ?
Hi and welcome to the forum. It is hard to know what to feel I think as none of us know how our journey will pan out. I had a very visible relapse in 2023 and although my consultant at the time told me it was MS as I had 23 lesions in my brain, Head of Neuro said it was a CIS.
It was only after I decided to go for a LP that I was diagnosed earlier this year and had my first infusion this week.
Not sure if I am in denial or just processing it but I still do not know how I feel about it. It’s quite isolating and due to fatigue and heavy limbs, I cannot do the stuff I used to do.
I guess we will all feel different day to day and have to process our emotions as they come.
Hi there, I was diagnosed beginning of December after several years of symptoms but didn’t previously consider or know much about MS until the last year. Understand the not know how to feel thing, I feel a bit of relief at answers and having started a DMT. Also a little bit lost as last relapse left lasting symptoms, so throwing myself at physiotherapy, exercise and surviving work.
Take your time adjusting and work on something to help yourself get through the next stages.
Hello Paul. Welcome to the ride. Taking a wee step back has helped me and now everyone seems to be rushing everywhere.