Hi there its well 04r.23am and I am having extreme difficulty getting off to sleep, which I must say is often NOT a problem during daylight hours time. Quite the opposite in fact. Recently in October I saw A consultant who specialises in MS. Intially they could not find my MRI scan results, so therefore he did not wish to ‘Label’ me with something unless he was sure.
Now although he gave an indication it was relapsing remitting MS, I have since recieved a letter in the post which was corrospondence sent to my doctors with regards to a particular medication I am currently on to help with the fatigue, and the first opening lines of this letter states ‘This lady has MS’ … for the first time … I picked up the phone called my mum … ;as you do’… and cried partly relief that It was there in black and white. I wasnt going mad after all.
But, now im feeling slightly in denial, as i’ve recieved alot of mixed messages from the consultants, I also now wish in some respects I had just been told in person. ‘Ruth you have MS’ … I would then feel it was more final, set in stone diagnosis.
Im not expecting no answers or responses from anyone… just felt I needed to get my thoughts out there… and I would like to sleep… but sitting on a laptop I fear I will not achieve this.
Many thanks to anyone who reads my moaning … I know their are people far worse off than I … I just need to shake myself off and get on with it … ‘stiff upper lip’.
Ruth that sounds like a totally normal reaction and it is hard when we receive conflicting information. I do not have a diagnosis as yet I am being worked through a range of tests and will be seen again once those are all done. Are you seeing them again? Maybe you could take someone with you and ask your consultant outright? Or talk to your GP? Hugs xxx
Sorry to hear about your diagnosis. I was diagnosed last year…it was a shock but in a way a relief to have an answer.
Do you have an appointment yet to go back and see neuro. you will need to know what type of ms you have and any treatment that can be offered.
Like Daisy has said, how you are feeling is quite normal. I went though all sorts of emotions following my diagnosis…its a bit like the grieving the process. It may help you to have a bit of a read around that subject, it may help.
Your not moaning, don’t ever think like that…we all need a good vent
Never say there are people worse off than yourself Ruth. Your worries are yours and you’ve a right to feel them. You come on here and vent anytime. If your lucky you just might get a few laughs too when you want cheering up of course
Many thanks for the kind responses to my messages. Sorry If I do not get back to you quickly, I’m still learning how to access the site and forum. I have rescheduled an appt and I shall be seeing the neuro consultant in January 27th so I shall discuss this all further with him.
I have done quite abit of reading around the area, but I am feeling better today, im not usually the type to cry its not my nature but it seems this news got the better of me. But I have got a grip of myself. Thankyou for your kind words of support.
Many thanks for the kinds words of support apologies for taking so long to respond I am still adapting to this site and the forum, this is my 2nd attempt at sending u messages back.
I have an appointment with my Neuro consultant in January as i rescheduled, Im sure I will get to ask further questions on the day.
Your welcome Ruth. Glad your feeling more positive…just try and take it one day at a time. Take care Hello Daisy Thank you for those lovely words. I was having a bit of a blip…reading them cheered me up. Just shows what lovely energy words can send out Thank you xxx
Hi Ruth i must agree with with the others Blossom has always it seems the right answers she has helped me a lot, keep coming on here and letting go it helps, we all need to vent our frustrations, i think i know how you feel as ive not been Dx yet but seem to be going round in circles, stay positive. xxxx
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Thank you xxx