I’ve been floating around on the forum for the last few months while waiting for a diagnosis.
I had an episode of optic neuritis in my left eye about 4 years ago which I luckily made a full recovery from after being hospitalised and pumped full of steroids. All then seemed to be OK until April this year when I started to get extremely tired, pain in my neck and the feeling as though someone had tied weights to my legs when I tried to get up and walk about.
I do have a very stressful job and had stupidly neen working 12 hour days so I just put it down to that. However when this didnt get any better I went to see my GP and he referred me for an MRI scan. Three more MRI scans and appointments with two neurology consultants later, yesterday afternoon I received my diagnosis of relapsing remitting MS. To be honest in my heart of hearts I knew that it was coming.
The consultant I saw yesterday who is an MS specialist was disussing starting me on some medication but was unsure what level of treatment or type of medication I should be given and explained that he wanted to discuss this with the MS nurse and one of his colleagues (another MS specialist) at a different hospital.
I have been trying to do some research into medication/treatments but feel totally clueless and was wondering if this was normal proceedure i.e for the neuro’s to get together and sit down to discuss treatment?
Also I wondered how people have dealt with telling people at work abut their diagnosis. I work for a small company where there are less than 30 people. Some of the people I work with are my friends both inside and outside of work and know what I have been dealing with so that’s fine and I have kept my employers up to date at each stage of the diagnosis journey so thats fi toone. The bit that concerns me is i am not sure what to do about the rest of my colleagues who I am not close with but who have seen the change in me and keep asking what is wrong. Being such a small company it is obvious when I am out of the office attending appointments etc but I know that some of these people are purely showing fake conscern just so they can get the gossip so to speak.
I would love to hear how people have coped with being newly diagnosed.
Best wishes to you all