Hello, My name is Zoe and I am 47 years old. I was diagnosed with RRMS on Jan 30th 2014. MRI showed 3 old lesions and LP was positive (12 O Bands). Based on this and some symptoms I had in Nov, 2013 and Feb, 2005 my neuro says MS. He wanted to put me on gilenya but I chose avonex. Take my second shot tonight. I thought it was wise to get a second opinion and the new neuro isn’t convinced yet. He wants to do another MRI and he has done VEP’'s and blood work. I go back in 2 weeks to get results. What do you all think? Is what my first neuro did enough or shall I do more testing? Thanks in advance Zoe
Anyone please?
I’m getting desperate now:)
hi zoe
its a waiting game.
you wait for however long for a diagnosis.
then you wait for the next round of tests.
at least you have the results from one neuro and are seeing a second neuro now.
try not to get stressed because that will only make your symptoms worse.
carole x
Thanks for the reply Carole. I’ll try to be patient:)
Hi zoe , I would do more test and see what comes from that , I got diagnoised after 1 episode in a few weeks with no lp. Im on copaxone now. I also saw a second neuro which was a wasre as he didn’t even look at my mri and just took the word from the 1st one so at least your new neuro is looking into things for you. Let us know how you get on . It confusing im a zoe with a surname being with t…
Zoe xx
Hi Zoe! Thanks for the reply. I will go ahead and complete all the tests and see what eventuates. I’m seeing him in another week and a bit so I’ll let you know how it goes. So you were dx after only one episode and and an mri and that’s it? I thought they needed more tests? Zoe x
Yes from what I understand as on mri I had 1 enchanced lesion and a couple of others non enhanced which are deemed to be older lesions ms was dx, they must have also been in the relevent places for ms. Lumper puncherewas done but not sent off so no results. Although I dont want ms glad I got om dmds soon as even if cis apparently it can reduce the time to 2nd attack. I had never suffered anything at all b4 so cqnt sqy oh yes that makes sense now so was a bolt out of the blue xx good luck with your appointment, im also traveling to london to see another neuro in april 18 months after dx as I like his attitude to treatments etc pm if you like xx
Hi Zoe, What I suggest is to google NICE guidelines on MS. NICE is what I cynically call doctors law. However there is a section on diagnosing MS - how they are supposed to do it. Not that I understand all of it. Good luck in your journey Min xx
Hi everyone Well I got my results back from the new neuro and he says CIS. So I’ll continue with the avonex and see how long I can ward off another episode. I’ve read that being diagnosed at a late stage (I’m 47) that I am more likely to progress quickly. Can anyone give me any information on this? Are any of you in a similar sutuation? Thank you Zoe
Hi everyone Well I got my results back from the new neuro and he says CIS. So I’ll continue with the avonex and see how long I can ward off another episode. I’ve read that being diagnosed at a late stage (I’m 47) that I am more likely to progress quickly. Can anyone give me any information on this? Are any of you in a similar sutuation? Thank you Zoe
Hi everyone Well I got my results back from the new neuro and he says CIS. So I’ll continue with the avonex and see how long I can ward off another episode. I’ve read that being diagnosed at a late stage (I’m 47) that I am more likely to progress quickly. Can anyone give me any information on this? Are any of you in a similar sutuation? Thank you Zoe
Hi everyone Well I got my results back from the new neuro and he says CIS. Good news is one of my lesions has already shrunk! So I’ll continue with the avonex and see how long I can ward off another episode. I’ve read that being diagnosed at a late stage (I’m 47) that I am more likely to progress quickly. Can anyone give me any information on this? Are any of you in a similar sutuation? Thank you Zoe
Zoe , im 40 and as I said above recently diagnoised. I dont think you should worry re age, ms is different for everyone and if one lesion has shrunk your body is good at repair. You might not every have another attack, you are doing all you can by taking dmds so worry about another attack if it happens xxxxzoe
I know this is easier said than done xx
Zoe , im 40 and as I said above recently diagnoised. I dont think you should worry re age, ms is different for everyone and if one lesion has shrunk your body is good at repair. You might not every have another attack, you are doing all you can by taking dmds so worry about another attack if it happens xxxxzoe
I know this is easier said than done xx
Zoe , im 40 and as I said above recently diagnoised. I dont think you should worry re age, ms is different for everyone and if one lesion has shrunk your body is good at repair. You might not every have another attack, you are doing all you can by taking dmds so worry about another attack if it happens xxxxzoe
I know this is easier said than done xx
Zoe , im 40 and as I said above recently diagnoised. I dont think you should worry re age, ms is different for everyone and if one lesion has shrunk your body is good at repair. You might not every have another attack, you are doing all you can by taking dmds so worry about another attack if it happens xxxxzoe
I know this is easier said than done xx
I’ve just been DX at nearly 47 had read the same about late DX progress quicker, when I asked neuro about this , he said " everyone is different your ms is your ms " So try not to worry about it. And enjoy life Take care Gray x
Thanks for the replies. I’m happy with my two diagnoses. Just going to take care of myself and keep up with the DMD’s. I feel completely healthy and find it amazing that I even have MS. The only time I feel crap is the day after my shot! But I suppose it’s a small price to pay considering the benefits. Gray, thanks for the good advice, you are right! X Zoe, thanks for the encouraging words:) XX