Hi, I am newly diagnosed. I had a clinically isolated incident a few years ago when I went blind in one eye, it was optic neuritis. Got MRI which showed one lesion. Wasn’t very well explained to me I just got told I didn’t have MS and that was that. Everything was fine until just after Xmas when I started getting the pain behind my eye again and my vision going. It wasn’t as bad this time, I’ve not went blind but colours are washed out like I’ve been looking at sun. Went to gp who referred me to neurologist.she explained that since this was a relapse I now have MS, my feet r also numb too and feel freezing. I’m still waiting on another MRI and have another neuro appointment. I am finding it all a bit scary, its quite alot to come to terms with. I am quite an active person with 3 children and I just don’t know what to expect.
Hi I too have now received my dx, now have a letter that tells me I have MS, (doesn’t help a bit) I stared a bit like you, vision problems in one eye that they called ‘radiologically isolated syndrome’, this lead to an MRI where they found lesions. I now have irregular symptoms of pain in my right arm that sometimes radiates up the side of my head. I developed a spasm on the left hand side of my face more recently that goes 247, this is what made me go back to my MS nurse who formally gave me my dx. The very first issue with my vision happened 2 yrs ago, it was indeed a lot to get my head around. I was very scared and knew nothing at all about MS. I’ve taken time to read quite a bit about it now, (wouldn’t recommend you go googling it, theres some total rubbish written about it too!). It’s easy for me to say this, but don’t stress to much if you can help it, I would suggest you get yourself some bumf on Newly Diagnosed from the MS Society website and have a read. I have have 2 children and am also a very active person, I can honestly say that I’ve not let it stop me doing anything, I still run, work full time and tear about doing the things I would normally do. As for what to expect, well that parts difficult I think, but reading up will shed some light on your situation! One thing I would be interested to ask you, I understand I have to inform the DVLA, do we also have to tell our insurance?? Take care and chin up!! Nico
Thanks for the reply, I’m just finding it a bit hard at the moment as it is alot to take in, not sure about dvla as I don’t drive. I’m trying my best just to carry on as usual but my numb feet and half blind in one eye is a constant reminder I have this, no idea how long this is going to last etc. They said they will go over meds etc at my next appointment after my MRI. I got told a few years ago I was low risk of getting ms but at my neuro appt a few weeks ago I got told I should have been told I was moderate risk as it showed one lesion. They r expecting more lesions at next MRI. It was a different neurologist first time, apparently it was a locum. The one I have now explained things more