Hey everyone, I’m 18 and yesterday I got the confirmation of my diagnosis. Although I currently live in Poland I decided to write here, because I applied to a few universities in the UK for September 2013 intake and I’m really desperate to go there this year even despite having MS.
It all started last November, before my mock exams at high school. Almost two months of terrible headaches, fatigue I’d never had before and some slight problems with vision in my right eye. For some time I hoped it would come and go, but unfortunately it didn’t. Later I felt some numbness in my right hand and leg, dizziness etc, so I decided to go to the neurologist. Got referred to an MRI and had the scan made over two weeks ago. It turned out there are some changes in my brain “like in MS”, so I dashed with the results to the same neurologist, who said it might as well be Lyme disease and referred me to the hospital. In the hospital they saw my scans, made a few test for Lyme disease (negative) and made a lumbar puncture. Its results indicate I’ve got MS.
I left the hospital on Monday, I’m still taking steroids and I’m struggling with their side effects (headaches, terrible lack of appetite, sleepiness, muscles pain). Also, I started to worry that maybe it’s not MS at all as there are hundreds of stories of people who were misdiagnosed and treated for it and later it turned out they had Lyme. As I said, I had some test for this disease but apparently none of them is 100% accurate and I that’s why I’m wondering (and worrying) whether they treat me for something I really do have.
After the MRI and at the hospital I was really positive about everything (much more than my parents tbh), but since yesterday I’ve been struggling a lot. Apart from all these thoughts about Lyme, also because I have my exams in May and by then I’ll have been halfway through the first three months of the proper treatment (with interferon), so I’m scared I won’t be able to overcome the side effects of it
I’m sorry for quite a long post, but I just feel I needed to open up and share my story with people who have/had similar problems. Any piece of advice would be fully appreciated.