So my saga starts in December 2012. I got numbness all down my left side, perfectly left side too. One side of my spine fine, other side tingly and all the way around to,my belly button. From my armpit down to my toes. GP said it was nothing and to just keep an eye on it. still struggling on the Friday so I went to the Local A&E. They couldn’t work out what was causing it… I’d googled symptoms (never a good idea lol) so doctor said he could rule out some things… Tested my responses and equal strength on both sides…yeah its definitely not MS. I wish hed told this to my body! I was advised to take it easy for a bit, it had already started to improve so it was all fine.
One year later again in December, the numbness came back only this time on both sides and in my arms too. Again neurological tests and equal responses. Some blood tests and a referral to a neurologist. While waiting the symptoms got better until I was on holiday in February and I had a little muscle weakness twice… I don’t even know if it can class as muscle weakness, more I thought my hand was doing what I wanted it to do and it was being a bit more clumsy. Got back from holiday and a week later finally had my neurologist appointmen, a visiting doctor in from another city for a weekend clinic. Again no muscle weakness or slow response, did I want them to investigate further? Honestly if symptoms hadn’t come back I probably would have said no. But instead I requested more tests, “oh well I suppose I could sent you for a scan, but it might not show anything” FINALLY 2 months later I had a head and neck mri. Couple of weeks later another appointment with a different visiting doctor. I went by myself and he wanted to send my for another scan, I had brain lesions and they wanted to investigate. And told me it was possibly MS. I honestly dont remember what else he suggested. Finally at the end of May on a Saturday (while battling a UTI) I went for my brain mri (yes I have a brain, my family and I were all amazed) then 3 days later I had an appointment with an actual Edinburgh consultant. I had to practically beg my fiancé to attend with me, he’d been working lots and was knackered and how much could they possibly know, I’d just had my scan. Luckily he came and sat with me as I was told “well we can look at the new mri in a minute and then talk about your diagnosis” and thats when I found out I have MS! A mild form with episodes and mine is not muscular its more sensory. The NHS has just approved some more medications, so I’m going back on the 17th July to decide what kind of medication I want to take. I’ve told more people than I can count and its just never ending. I was at the dentist yesterday and they asked had anything changed medically so I thought I best tell them incase they need to know, then 2 hrs later I’m at optician for my contact lense check and the same thing happens, again telling a random stranger incase they need to know…
Any advice or information, or pretty much just confirmation I’m not the only one feeling this would be greatly appreciated,