Hi there. Just posting to say hello, was diagnosed last month after three MRIs showed extensive lesions in brain and spinal cord.
Have had various symptoms for last four years, been under a headache specialist for chronic migraines, rheumatologist, gastroenterologist…and then earlier this year a newish GP decided she was going to start investigations untill she got an answer, so here I am .
What I’ve been doing over the past six months is reading all the info available on the MS sites, so my diagnosis came as no surprise infact it came as a relief, which I know some of you will understand.
However, what I want you all to know is that the biggest source of help, support, inspiration and insight has come from all of you here. I started at the beginning and read through all the posts up to the present day. Infact I think it should be prescribed for all new PPMSers as a way of gaining invaluable information…who better to provide that than everyone who has been battling with the " beast " !
I am blessed with a fantastic hubby and supportive family, retired last year ( ex nurse ). Not what we were planning for retirement, but when I have read how some of you still try to work and the problems associated I feel quite humble.
You have helped me to accept my PPMS, realise it’s about moving into the slow-lane, taking each day as it comes, pace, pace and pace yourself and REST and to keep positive.
I’m sure I will be back to ask questions and feel I now belong to a very exclusive club.